I've Stepped Into The Twilight Zone?

In 1997 I was on top of the world as a local hot club dj.

Now, ten years later I have a 6 year old disabled child because of someone's stupidity and laziness and selfishness in a high risk birth situation. Now, my daughter is 6 almost 7 and she can walk, but barely. She has hearing loss, expressive language disorder which means she does not speak the English language. Oh yeah...cerebral palsy & mental dificiencieis. We are currently working on sign language. She knows her alphabets, numbers, colors and shapes but cannot carry on a cognitive conversation with anyone. She barely steps out of her world which consists of fast-forwarding and rewinding Elmo videos, or any video she can get her hands onto. She does not play with toys or children in a normal fashion. She is still is diapers and pullups, but we have been working on potty training for two years now. She wears hearing aids, walking braces, ankle brace, wrist brace and that's if for now.

All I can think is....God help m

I think I have more anger and frustration issues mostly. Oh yeah, I suffer from panic disorder and PTSD.

So sorry to hear about your daughter. My brother has cerebral palsy too. He is 40 years old and not as severe as your daughter. He averages out to function at an average 8 year olds level, meaning he is real good at some things like he puts together 1,000 piece puzzles in one night, but not other stuff like he can not read or do math.

Is your daughter in school. My parents got my brother involved in school as soon as they could. It helped him alot. Now they have more specialized classes that are better than they were when he was in school.

To give you a glimpse of what life is like for my brother now, he lives with my parents and will untill they get too old and can't take care of him, then he will live with me or go to a group home type setting.

He attends a day program that he loves, he likes to be outside doing stuff, he hates having to sit still. He is good at figuring stuff out. Though he cannot read and his speech is not able to be understood. He knows some sign language even though no one in my family knows it. We still understand what he wants, needs, wants us to know because we know him so well.

What I suggest for you is to see if you can get involved in some sort of support group for parents of disabled children, check out your hospitals and schools that have special education classes.

It sounds like you are overwhelmed, which is understandable. Just remember she is doing the best she can, so are you and things will work out.

My brother is a kindest, sweetest, gentlest, most giving person I know. He dislikes no one and he is liked by every one who knows him.

You are being taught a hard lesson .It will prepare you for something great ,someday.

I am wondering if your daughter could go to some kind of special day program. This would give you time for yourself. This is a heavy burden to carry. Perhaps a support group for parents like yourself would be helpful.
Maybe you could find one listed at a local hospital.
Best Wishes

I never meant to be so bad to you
One thing I said that I would never do
One look from you and I would fall from grace
And that would wipe this smile right from my face

Do you remember when we used to dance
And incidence arose from circumstance
One thing lead to another we were young
And we would scream together songs unsung

It was the heat of the moment
Telling me what your heart meant
Heat of the moment shone in your eyes

And now you find yourself in 82
The disco hotspots hold no charm for you
You cant concern yourself with bigger things
You catch the pearl and ride the dragons wings

And when your looks are gone and youre alone
How many nights you sit beside the phone
What were the things you wanted for yourself
Teenage ambition you remember well