I'm trying to find out more information about this disease. My 73 year old mother was just diagnosed with it. I've researched all the medical stuff but I'm interested in truthful answers on the quality of your life after diagnosis and treatment. Wegner's has been associated with Alpha-1 Antitrypsin deficiency. You might ask them about that. I had a friend that has Alpha-1 and Wegener's and he is now in remission with his Wegener's and doing very well. If you live near the Jewish Hospital in Denver they are excellent for these kinds of things. Dr. Sandhaus there is very experienced.
Take Care, With early diagnosis and treatment, the quality of life is good. Acute recurrences are a problem. Go to National Jewish Hospital in Denver! the have a well organized Webpage with info and are the USA's #1 Lungcare Hospital! | 