Do you know anyone who has Vasculitis ?

My dad was diagnosed with Wegeners granulomatosis vasculitis about 4 1/2 years ago at that time he was given 6mth to a year to live thankfully God has blessed us and he is still with us but he is still battleing this disease to this day he has never went into remission it took his kidneys shortly after his diagnosis and he has been on dialysis since it has moved into his lungs but so far they have been able to keep that part of it somewhat in control and we think it may have moved into his sinuses recently he has such a hard time with this disease and has pretty much been given a death sentence by the doctor twice once in the begining and again about a year later but he has kept fighting and is still here he is still on chemo but the last time when it was time to start chemo again the doctor was wanting to back off from it which is very scary i would like to hear others experience with this good or bad you dont have to spare me i already know its an ugly thing to deal with -thank you!!

People with Rheumatoid Arthritis have vascular disease, as in vasculitis, or inflammation of the vascular system. I have RA, so am prone to it, but to date am doing fine. Had a few blips with my kidneys, heart, lungs in the past but was able to control the problem. I am but 48 hoping to make 49, but am not looking forward to this problem. I expect your father will go through flare ups and remissions, but allow the Doc to make the decisions.