Does anyone else have urticaria pigmentosa?

I have this skin conditon called urticaria pigmentosa and its quite rare but other people do have it. I was just wondering if anyone new anyway to help hid them because im coverd in pink freckles. Its because my body produces to much histamene so i have to take antihistamenes everyday. I would be very greatful if anyone could help.

I had not heard of this until I seen your question posted so I looked it up on Wikipedia and found the following information. There is a lot more there and I put the address at the bottom in case you want to look it up and read more of the article. Good luck.

[edit] Irritants
The following can worsen the symptoms of Urticaria Pigmentosa:

Emotional Stress
Physical Stimuli such as heat, friction, and excessive exercise
Bacterial toxins
Venom
Eye drops containing dextran
NSAIDs
Alcohol
morphine
The classification of NSAIDs can be disputed. Aspirin, for example, causes the mast cells to degranulate, releasing histamines and causing symptoms to flare. However, daily intake of 81mg aspirin may keep the mast cells degranulated. Thus, while symptoms may be worsened at first, they can get better as the mast cells are unable to recover.

This is from "The Skin Site":
Patients with urticaria pigmentosa should avoid aspirin, codeine, opiates, procaine, alcohol. polymyxin B, hot baths, and vigorous rubbing after bathing and showering. These can release histamine which can cause itching, flushing and hives.

This is from "DermNet NZ":Treatment
Urticaria pigmentosa is not serious, and does not require any treatment in most cases. However the following can be helpful.

Oral antihistamines

Mast cell stabilisers
Disodium cromoglicate orally may be helpful in some cases

Low-dose aspirin
Paradoxically, this can help some patients, but must be taken cautiously as aspirin can also worsen symptoms

Topical steroids
Potent steroid creams applied for several months under occlusion can reduce itching and unsightliness, but the patches tend to recur within a few months. Topical steroids are only suitable for limited areas.

Photochemotherapy.(PUVA)
This form of ultraviolet radiation is the most effective treatment for adults with urticaria pigmentosa. Two or three treatments each week are required for several months.

PUVA lessens the itch and improves the appearance. The urticaria pigmentosa is likely to recur within six to twelve months but the treatment can be repeated.

Interferon An expensive treatment appropriate only for the most severely affected individuals

Jade - I also have urticaria pigmentosa (for about 7 years now). If you want to get in touch email me on spencerwaldron@yahoo.com Report It