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Wondering if there could be a connection between Protein C Deficiency and elevated Alk Phos?

Sibling and mother just tested positive for Protein C Deficiency...Type II which is very rare....
I have been in the hospital before with a blood clot in my leg...so, I assume that I have it too....and will be getting tested.
But, in all of my reading...medical reports...I have grown weary...as I don't understand most of the language...but I did see something about hepsin...which seems to link the two.
My son....a few years back had lab tests that showed alk phos levels that were through the roof....way over 2000....and was retested......same results....and then the third time....a week or so later.....they fell into the normal range. I am now wondering...if there is any connection....as we have realized in our research that our grandmother must have had PCD as well...and died of a PE....just 5 days after being taken off of aspirin therapy. I wondered if the alk phos test could have been an indicator....and we missed it.....and should I get him tested as well? (sorry if tmi)

It seems like youve read a lot about it but the jargon and definitions have made the reading difficult. Alkaline phosphatase is an indicator of many conditions but i dont think it indicates a clotting problem. What makes people notice prtien c deficiency is the increased clotting that occurs. Alk pho indicates many things from a clogged hepatic duct to bone problems. It wouldnt hurt to get him tested on the basis of the family history alone, but to justify the test based on the alk phopspatase levels wouldnt be enough. The best indicator in your situation is the level of its frequency in your family, that alone should reaise your level of suspicion. I hope this helps and i hope he feels better.

there is no such thing as too much information (that's why we have the page down key hehe). You are doing a great job researching the area that is so poorly studied. Keep going. Have you heard of the story of lorenzo's oil. It was of a person similar to you who had no medical background but through personal research and trials found a solution to the problem that none of the major pharmaceutical companies would touch because there was no money in it.

I hope someone more informed answers your questions, this was just a vote of support

Do as much as you can, and speak to as many people as you can. Believe it or not you may be the answer to this problem.

Keep trying

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