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Any one ever heard of Turner's Syndrome?


I'm 16 and I have mosaic Turner's Syndrome, so it's not full blown Turner's. I look normal, exept for the fact I'm short.

I have problems with my ears (deafness in my left ear due to inner ear surgery complications due to Turner's Syndrome) and I have problems with my thyroid (my immune system attacks it, so it's very weak at this point) and I have problems with my reproductive organs ( I most likely can't have kids). I also had to take growth horomones for about a year, I'm now a tall height of 5'3.

I've been told there's an 85% chance I'm sterile, and even if I could conceive I wouldn't be able to keep the pregnancy full term.

If you know somone with Turner's Syndrome or you have it yourself, please tell me. Also even if you know anything about it please reply, I'm just curious.

Turner Syndrome is a female with only one X instead of 2. Since you are mosaic, you have a normal cell line and the monosomy X cell line. You do have a much lower rate of fertility, and a chance for premature ovarian failure. If you have a period, you may be able to conceive. Talk to your OB/GYN when you are ready to have a family, she will be able to help you. If you do become pregnant, make sure the doctor knows of your condition - she will be able to give you the care necessary for a high risk pregnancy.

Go to http://www.turnersyndrome.org

http://www.turner-syndrome-us.org/

check out this site...it seems informative and patient friendly...good luck and God bless.

my 10yrold daughter has classic turner syndrome (X0)
she's been on growth hormone since she was 4yr old, even with that just now she's only 3ft 11" tall.. With my daughter is nearer 99% chance she's sterile.. My daughter also seems to have a low immune system, i'm not sure if this is part of her TS or just the way she'd have been anyway........
I know a lady with TS (classic TS like my daughter) and she's recently given birth to a baby boy, concieved via IVF with donor eggs. she's ony 4ft 9" and had a trouble free pregnancy. I know of other TS ladies who've had babies too (IVF) one even had identical twins...
my daughter has very few health problems, her thyroid function is fine, ears ok, no heart or kidney problems either, hopefully this will continue as she gets older.

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