Since it's mosaic it's not like full blown Turner's Syndrome.
I have problems with my ears (deafness in my left ear due to inner ear surgery complications due to Turner's Syndrome) and I have problems with my thyroid (my immune system attacks it, so it's very weak at this point) and I have problems with my reproductive organs ( I most likely can't have kids). I also had to take growth horomone for about a year, I'm now a tall height of 5'3.
If you know somone with Turner's Syndrome or you have it yourself, please tell me.
The worst part I think about having this is knowing I most likely can't have kids, I'm only 16 so it was a big blow to learn that option has been taken away from me. But I'm really interested in adopting so everything will work out fine. I don't know anyone with Turner鈥檚 syndrome - but with in the next few weeks I will be having a daughter that has already been diagnosed with mosaic Turner鈥檚 syndrome. When we first got the diagnoses from an amino I was absolutely blown away. Worried and very "what the hell is this? I've never heard of it...鈥?kind of reaction. I've done tons of research and gotten online with a Yahoo group for people and families with Turners - best thing I've done!!! Any time I have a question - no matter how stupid it may seem - I get real - honest answers that don't make me feel like I'm asking a dumb question. -
You say you're 5'3" - well LUCKY YOU... I'm "normal" and am only 5' 1 3/4" at 39.. lol and my poor Mum was only 4' 10"... we're just a short family so even if this little one doesn鈥檛 get much taller than 5' she'll fit right in - my sister is only 5'1"....
You're 16 - if you don't mind me asking - have you started any female development at all? or are you taking hormones for that too??? From what I've been informed Mosaic girls have a chance of being able to have children naturally - depending on tons of things - as I'm sure you're aware. Also if you can have children - would you knowing that you may pass on Turners if you were to have a daughter. I believe that is the information that I was given. E-mail me if you want to chat more.. but please make it clear that you are contacting me from the Yahoo answers about Turners - or I'll tend to delete all unknown e-mails
Soon to be Mom of a Mosaic Turners Daughter... also known as - our 6th bundle of absolute joy! HI - I don't have Turner's, nor do I know anyone with it, but I do know lots of women who don't or can't have children. Chances are you are not sterile - if you have a uterus, ovaries and you get a menstrual period at least once a year, there is just as good a chance you will have children as half the people on the planet.
HOWEVER, that being said, let's assume for a moment you can't have children. Please keep in mind that while it's wonderful to have babies (I've had five myself), it is also wonderful not to have them.
Not having children means you can concentrate your gifts, talents and resources to causes that are important to you - that you can have the time and freedom to change the world and make it a better place for lots of people and lots of children, who may not be yours, but will benefit from your endeavors.
There are so many important issues going on - global warming, civil rights, terrorism, women's rights (not just here, but in countries where women are still considered property and where they live at the mercy of not only their husband, but their government.)
I could go on for hours - but that wouldn't really make my point, which is, being a woman is so much more than being a mother. There are lots of women (and men) making the decision to be childless just so they can address some of these issues and make life better for everyone.
Having Turner's gives you an even deeper perspective on what needs to be changed, because you have already come against the stereotyping that keeps our world in a mediocre place. When we have a debilitating condition we long to be normal - but what does that mean? Being like everybody else? Is that always so great???
As I said to begin with, chances are good that you will have your own child, but at 16, with these thoughts going on in your heart, it's a good time to reevaluate what is right for you. Dig deep and then, work hard, follow your real desire and most of all, have fun.
Oh, and if you have a little girl, consider naming her katy.
thanks
katy Hi,
My name is Kimberly, I'm 23, and I have full blown TS. Luckily my thyroid has been frequently tested and that is fine (they thought maybe it wasn't because I frequently have a high pulse rate), but I have some hearing (in my left ear as well, I need a hearing aid) and vision loss and some mild heart problems, and high blood pressure, which is very common in TS...
I know how you feel about the children thing, II know it's a blow. I've known since I was 11 and I still find it very hard to cope with. I too plan on adopting, but it can a long and difficult process and alot of people don't get accepted for one reason or another. I'm 5'1, by the way...
Anyway, I know being newly diagnosed can be scary, so please feel free to e-mail me (AlisonParkerHanson@hotmail.com) and ask me any other questions you may have.. my 10yrold daughter has classic turner syndrome (X0)
she's been on growth hormone since she was 4yr old, even with that just now she's only 3ft 11" tall.. With my daughter is nearer 99% chance she's sterile.. My daughter also seems to have a low immune system, i'm not sure if this is part of her TS or just the way she'd have been anyway........
I know a lady with TS (classic TS like my daughter) and she's recently given birth to a baby boy, concieved via IVF with donor eggs. she's ony 4ft 9" and had a trouble free pregnancy. I know of other TS ladies who've had babies too (IVF) one even had identical twins...
my daughter has very few health problems, her thyroid function is fine, ears ok, no heart or kidney problems either, hopefully this will continue as she gets older. |
