Does anyone here have a child with Turner's Syndrome?

My 15 yr. old was just diagnosed with Turner's and we have an appt. with a specialist in July. I guess I just need some "comfort" as I am so worried about her.

Please no MEAN replies from negative people. This is very serious to us!!

My daughter looks totally normal, except she is 15, but the size of a 10 yr old. She doesn't look like a "hobbit" so we didn't know she had any kind of problem until she quit growing and didn't hit puberty in a timely manner.

Hi Deb,
I know the feeling of this and it is not easy. My son has disabilities and I understand how you are feeling. You are going to experience a grieving process... This is all perfectly normal. Here is something you can do though that might help. educate yourself about Turner Syndrome. find out as much as you can about it. This will help you understand the disorder better and provide some kind of relief. Also try and hook up with parents who have children with the same syndrome. You will need plenty of support and someone to share the same things and feelings as you.
My heart goes out to you and your family. I wish the best for your daughter too. Please take care of yourself and be thankful for who your daughter is as a unique individual with a lot of strengths and abilities.

So what, she might look like a female hobbit with big hands and feet and hair all over but - she's still your daughter so love her like you would love any daughter.

I hope I helped.

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