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What help is available in Oregon for Male Turner Syndrome? |
My new great grandson (Dec 28 '06)was diagnosed with this birth defect. Most of the info I've found is very outdated and seemingly obsolete. My daughter was told that there are no Dr's in OR who deal with this. Also, what financial help might be available...the baby's mommy is only 15 and cannot get help from the state and her parents' insurance will not cover the baby. HELP! Please visit http://www.rarediseases.org/ . Tons of information there. I copied some of what I thought might be most helpful to you. Best wishes to you and your family. Contact the Oregon Newborn screening program at |
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Turner syndrome is caused by the lack (or partial lack)of an x chromosome, it only affects females..there is no real "cause" of TS it is nothing to do with a parents age,ethnic origin or ... Women with Turner syndrome are at a moderately increased risk of developing type 1 diabetes in childhood and a substantially increased risk of developing type 2 diabetes by adult years ...turner's syndrome is a genetic disease in which a woman has an absence of one of the sex chromosomes...only women are affected by it. normally, women are born with two XX chromosomes - these ... You know what a duck's webbed feet look like? In girls with Turner's syndrome, there is webbed skin like that at the neck. Put your pinky finger a couple inches below your ear lobe and yo... any culture can be affected. turner syndrome is an anormality in the chromosomes. a person with turner has XXX, instead of XX, it will be a female and cant have childs, and she will be short, with ... Maybe, but the risk is high "Pregnancy: As more women with Turner syndrome complete pregnancy thanks to the new modern techniques to treat infertility, it has to be noted that pregnancy... No but I have read about it and I hope you do not have a serious developmental/phyical problems. ...nothing can cure turner syndrome but things can be done to help those with it. as for reducing the am out born with it, the only way is to terminate pregnancies if TS is diagnosed in-utero.....the... |
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