Seizures Occur But Not Diagnosed With Epilepsy, Please Advise!?

My son has had seizures for the last several years. They do not occur often enough to be diagnosed with epilepsy, maybe once every couple of months and only at night in his sleep. He has had a Cat Scan, bloodwork and several EEG's and they all come back normal. Last week he had 2 seizures w/i 30 minutes of each other. The oncall neurologist at the hospital put him on seizure meds and his normal neurologist has agreed with this until he can see my son in Sept. My son has had no serious health conditions and no hits on the head nothing that explains his condition. I have done research and have found that it is normal to have a seizure or 2 in ones life time, but my son has had more than 1 or 2. My son has a good neurologist but I have to think there is more to this than he is letting on. All my research leads back to epilepsy and he does not have that. Has anyone been through this at all or is experiencing it now? I welcome anything anyone has to say about this situation.

I haven't personally experienced the situation, but I have seen a child with seizures being treated with chiropractic adjustments and the freqency and severity of these seizures did decrease over a period of several months of adjustments of the cervical vertebrae. The child was then able to do better in school and read at a higher level. You should consider getting in touch with a chiropractor in your area....adjustments can really help with children that have seizures.

epilepsy is just a broad term for someone who has had more than one seizure which hasn't been explained (either from injury, from medications, high fever etc). it seems your son either may have epilepsy, just the doctors are trying to figure out what type, or maybe they are still searching for any organic causes that may cause his seizures. hope this helps and good luck

There is a condition called non-epileptic seizure disorder that is used when the tests come back inconclusive.

Depending on the age of your son, his over all health, family history, and other factors, the seizures could be allergy related, environment related, medication related, etc.

Since he is having seizures in his sleep, a sleep study may help.

What kind of seizures have you witnessed?

During sleep, the body secrets a chemical that paralyzes the muscles, if you are seeing jerking, flapping motions, it may be your son is dreaming and is fighting the chemical.

The chemical is to prevent people from acting out their dreams (sleep walkers overcome it) and preventing injuries.

Ive been treated as an epileptic for over fourty years and theyve just told me Im not.
In that time. One of the tings they say it might be is missing beats in the heart. They can only tell this if they leave a heart monitor on you for over 24 hours or longer. They give you a portable one to take home with you. The only thing that worked with me was one Doctor decided it was my thyroid and gave me thyroid medicines. During that time my fits stopped. Unfortunately when I moved the new doctor dissagreed and put me back on epilepsy meds which incidently never worked.
My Thyroid was borderline he said and didnt even have it checked by a specialst.

I have had seizures all my life and they didn't start to get bad until I was at the age of 9year old and like your son I would have one seizure and then I wouldn't have another one for months at a time and the doctors that my mom took me to wouldn't put me on any meds for the seizures because I they didn't see any reason to do so.
But when I was 9 years old I also started to have them at night and I was having 2-3 seizures during the day. The best thing I can tell you for when you go to see the doctor is to keep notes of when he has a seizure and the time of the day it happened and how long the seizure was because I did that and it seemed to help the doctors more on what meds helped me and the ones that didn't help me.

And please tell you son that he's not the only one who has to go through this and I know it must be hard on you because I don't know how my mom got through all this with my seizures.
And you might want to look into a support groups for those who have seizures because not only will your son have someone to talk to but you might be able to find out more about doctors in your area and moms that have been through the same thing as your going through right now. Good Luck and I hope this helps you and your son.

The reason why your sons seizures could be getting worse is that he is entering the stage in his life where he is probably starting to go through puberty. I have a friend whose neice has been having seizures since she was really young, and hers just began to get worse because of puberty. Generally what I have heard about it is that it is possible your son could grow out of the seizures by his 20s, but only a neurologist and time will tell you that. Good Luck with your son