4-year-old having seizures.?

My son, who just turned 4 in April, just recently started having seizures. We don't know why, and neither do the doctors. He's been to pediatricians, child specialists, and even child neurologists. They've done E.E.G.'s, MRI's, and CT Scans. Everything's been 100% normal. First they put him on Tegretol, but he continued to have the seizures, so they put him on Trileptal. That was 2 months ago, and last week he started having seizures again. He's never had any other health issues, or any head trauma, or anything. We don't know what's causing this and it's starting to worry me. Several people have told me that their kids had seizures before, but grew out of them. We're hoping our son will too.
Does anyone have any experience with this or any advice? (I already know to watch him, and not leave him alone, and to put him on his side when he's seizing, and not to put anything in his mouth.)
Thanks in advance guys... Anything is appreciated. I'm so stressed right now.

My son started having siezures when he was around 18 months old, if he gets the slightest temperature or runs about a bit too much, or quite often we just don't know the reason, he has had quite a few in his sleep, we have a moniter on to listen to him, he can very quickly over heat.

He is now 4 and he doesn't have seizures as often, but he has started to have hallucionations which are very frightening for him, but he does seem to be growing out of them each one seems less severe than the last.

Hope your son grows out of them too, hope your son is not too stressed about them I know they can be quite scary for a little fella, take care

Bless

It is possible for an allergy to cause seizures, ask your doctor if he/she will send your son for some allergy tests.

Hope he gets sorted very soon

Love to you both

I was one of 'those kids' that had seizures as a child and grew out of them. I was on phenabarbitrol (sp?) for it for years. They finally weened me off when i was 7 or 8, and I've never had another one. I do however, suffer from migranes, which they have determined to be caused by the same brain activity that causes siezures, and they have attempted treating the migraines with siezure meds. I didn't like the side effects from it, but it was helping.

A good friend of mine did daycare in her home for awhile. One of the little boys that she had in her daycare was prone to seizures though the parents never told her until after he had one at her house during her hours of watching him. This little boy had seizures brought on by running even the slightest of fevers and I mean slight. She called the paramedics the first time it happened. After that she was more aware of the signs to look for before it happens. If there are signs before this happens things liek staring off into space, white and clammy, she was told to cool him down. Another thing they also tend to lose control of their bladders and stuff so you really need to reassure especially a 4 year old who is probably just completely potty trained that it is ok so they don't feel bad about wetting themselves.
My aunt also had a son who started having seizures later on when he was 18, it was stress related. So when ever he got stressed out he would have a siezure. The bad thing about having them later like this they took his drivers licsence until he was seizure free for x amount of time and if he had any seizures during that time it upped the time before he got it back. Stunk for him being 18 and dating.
Anyways in both cases they did test after test and found nothing, meds helped some but always those break throughs. Hope this helps a ittle.
I have 5 kids and my last two have asthma bad and really bad food and other allergies that can be deathly to them all so I can understand your being stressed. Maybe find one of the yahoo groups of mothers with kids with seizure disorders. They tend to have groups for just about anything. Maybe even americanbaby.com or some of the baby sites that cater to parents with kids of all ages, but they all have chat groups.
Beth

leslie,,,,,,medical lit this subject,'seizures for uk reasons,tests neg,everything fine" is familiar to people with fungal illness,sleep disorder,sleep apnea,addhd...i've answered like a hundred qs this subject,,,,the boy might see a doc through the american academy of environmental medicine,,,,they're in wichita ks,,,,tenets are that many illnesses have cause and treatment in sensitivities to foods,and chemicals in the environment,,,,boy might be seizing because of foods ,reactions worsened because of ear infection, or a bit of a cold.the tests consist of injection of a couple cc of food or chemical extract,the inventor of this tool was named herb rinkel,who would experience seizures after eating an egg,,,he'd fall to floor,roll eyes,for a minute or so,his docs found nothing on eeg,vision normal,everything fine,,,,,,,,,but the guy still said he had a seizure,rinkel set out to find a test that explained what he was experiencing ,the test was the 5 cc food injection extract test that produced a wheal that was corroborative of his symptom.its called rinkel serial dilution challenge,mmri.cat,eeg,these tests are treated as the end all when docs want evidence for symptoms.they are not infallable,and in your sons case,meaningless .the aaem docs are expensive,at least initially,,,,800 to a thousand bucks sue & payable upfront.the drs closest by can be contacted for appt by calling or emailing wichita office.the insurance companies neither recognize aaem docs as specialists,nor are they likely to pay for the bill.if you are perhaps able to finagle a referral outa the ins companies,ill putya in my will.measures you might take before the appt,or instead of the appt,are to put boy on an 11 hr fast,no food for 11 hrs,but give him a glass of tap or mineral water ,8 oz ,once an hour for 11 hrs,this is to allow body to eliminate the offending food from the system,also make sure boys environment,living area is free from mold,pesticides,fresh paint.sometimes humans big or small react to chemicals like pthalates in plastics with nausea,irregular sleep,an offending food sometimes worsens the bodies tolerance to chemicals too.after 11 hrs,you give him a small piece of food,this drawn from the diet of previous week,wait i half hour ,noting whether symptoms recur,,,,,try another piece of different food,,,,same routine again,,,,,,,,the process is called direct challenge,and takes time,,,is mostly trial & elimination,trial & error.in the drs office ,challenge consists of injecting food extract under the skin,waiting for 12 to 20 minutes,,,,,,,a wheal on the skin with reddened edges is a positive reaction,and often the pt might show seizure symptoms,and doc injects a reduced strength(by a factor of 100 to 500 times) waits 12 to 20 minutes,tries another reduced strength injection,,,,,the neutralizing dose is the one that reduces the wheal,hence ,the seizure symptom.this allergen could be food or chemical,and the series of tests derive from the long,long health questionnaire that you 've brought to the office,already filled out,,,,,,the number of foods/chems that he's allergic to depend on the boys particular constitution ,peculiar to him alone ,like eye color & all the quirks that make up a human being,the diet the doc prescribes will be yeast,dairy,sugar free,,,offending foods are avoided,,,,those that can be tolerated and ROTATED which means the same food will not be eaten more than once in three or four days.meds may also include antifungals,,,,nystatin oral powder,diflucan,etc,,,,organic foods & produce are optimal,,,,,because they are processed without pesticides,preservatives,corn syrups,etc coupla items just occured to me,,docs oughta draw blood to do a sedimentation rate,this checks blood for antibodies,,,,norm is 200 below,,was 492 in my case,allergy doc sent me packin(was a board certified allergist,not rhe aaem doc who eventually put me on the mend),also might be helpful to give boy acidophilus ,either in yoghurt or from a bottle from health food store,,,they provide assist with enabling body to use minerals & proteins,,,,,,,a sick kid is a sick kid,your docs typify allopathic medical practise,,,,it is common sense to trust moms instinct that my kid is sick,help him,,,,,,doctors who do not consider the stuff i've typed out,(medical techniques that i'm acquainted with ,but he SHOULD be seen by one of the fellas above,be he/she a pediatrician,gp,,,,aaem doc are dentists,babydocs,gps,chiropractors,,,,w... same training as your doc,but intern for a couple years at at aaem facility in wichita,,,gulf war vets have seen em,,,,they do the best work in the business,and business it is

What is the diet like? could be food intolerance (sugar+etc...) Does he get enough saturate fat and Cholesterol (they are essential for brain development+neurotransmitters)... Did he recently get vaccinated, vaccinations can cause all kinds of problems. (although a doctor will rarely attribute this as a cause)