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My husband has just been diagnoised with Scleroderma, can anyone help me? |
Does anyone know what kind of doctor to take him to. He is 72 Finger-stretching exercises can improve range of motion in the joints of individuals who suffer from scleroderma (also known as systemic sclerosis) -- a chronic disease that causes skin thickening and tightening and the formation of scar tissue. http://en.wikipedia.org/wiki/Scleroderma A rheumatologist, who treats arthritis and other rheumatic diseases. These include scleroderma and systemic lupus erythematosus (lupus or SLE). He will need to be under the care of a skin doctor, also called a dermatologist. I am sorry for his diagnosis. Scleroderma can be a very painful and debilitating disease. You may also want to join an online or in-person Scleroderma support group. My warmest thoughts go out to you and your family. Go to Webmd.com I've been working with a Family Doctor for the past eight years and have come across a few cases of scleroderma. Generally, different doctors become involved as the disease progresses or perhaps other diseases develop, hopefully your husband's case is not very aggressive and is uncomplicated. Internal Medicine specialists is a good beginning. There is also Rheumatology and Endocrinology. The Internal Medicine doctor generally checks all blood work and gives medications to the patient to try, hopefully to alleviate any symptoms. A Rheumatologist can help with the soft tissue pains, rule out arthritis, get x-rays and set the patpatientnt up with any rehabilitative programs, ie. Physiotherapy, Occupational Therapy and home assessments. Endocrinologists are generally involved if there are also other diseases such as hypothyroidism, diabetes and hypertension. Exercise is definitely a help. It doesn't have to be a marathon, but a vigorous walk, swim, yoga are all very good for the body as it starts to slow but more importantly GREAT for the mind and spirit as the difficulties become harder to cope with. Be sure to also get his eyes checked, especially after medication add-ons or changes as the disease as well as different medications can alter visual acuity. An ophthalmologist or local optometrist can detect this. I wish you both luck and I hope everything goes well for you. Please speak to the physician who diagnosed him. So many body systems can be affected by scleroderma that it's difficult to say which one he should start with. Your question needs to be addressed by his doctor. Please make that call for a referral to a specialist. This is my professional advice to you. Take it. |
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