Synovial Sarcoma?

My daughter-in-law was diagnosed with Synovial Sarcoma recently. It is a rare form of cancer. It is in one of her lungs. She will be having surgery sometime next week, and then comes radiation therapy. I have read a lot about this type of cancer, and the prognosis is discouraging. Does anyone have any experience with this type of cancer personally, or within your circle of friends or family?

Your daughter in law should be treated by a sarcoma specialist or at a sarcoma center because this disease is so rare. The best places to find information about sarcoma is with the support groups.

Sarcoma Alliance
http://www.sarcomaalliance.com/

There are people with synovial sarcoma that post on the message board at the Sarcoma Alliance. You can also find a list of sarcoma centers and ask about specialists. They are an excellent resource.

My Space: Synovial Sarcoma Support Group
http://groups.myspace.com/synovialsarcom...

The Liddy Shriver Sarcoma Initiative
http://liddyshriversarcomainitiative.org...
http://liddyshriversarcomainitiative.org...

This is an advocacy group and they have gathered information about clinical trials and all types of sarcoma. They are active in supporting sarcoma research. Excellent resource.

There is also an email support group where you can find good information and much support for your daughter in law:

ACOR: SARCOMA: The General Sarcoma (Cancer) Online Support Group
http://listserv.acor.org/archives/sarcom...

Post it Note Sarcoma Links - comprehensive list of all sarcoma websites and information
http://www.protopage.com/sarcoma#Sarcoma...

My son also has a rare sarcoma. He was diagnosed two years ago and is currently undergoing a clinical trial and doing well.

Best not to pay too much attention to prognosis. Everyone is an individual and reacts differently. Just concentrate on finding the best medical treatment available . . and make sure she is seen at a sarcoma center or by a sarcoma specialist . . or at least have her regular onocologist in close contact with them.

Best to you. Stay strong.

she is going to need major support, there is strong possibility she will have to have further surgery and its spread to other areas. I suggest a good support group for you, and for her too. basically you can pray, yet dont leave it there, she needs comfort right now, someone to help her to the hopital and a woman friend to vent and be emotionally bonded to.

the word love

A void negative sources, people, things and habits.

B elieve in yourself.

C onsider things from every angle.

D on't give up and don't give in.

Enjoy life today, yesterday is gone and tomorrow may never come.

Family and Friends are hidden treasures. Seek them and enjoy their riches.

Give more than you planned to give.

H ang on to your dreams.

Ignore those who try to discourage you.

J ust do it!

K eep on trying, no matter how hard it seems.

I t will get better.

L ove yourself first and foremost.

Make it happen.

N ever lie, cheat or steal. Always strike a fair deal.

Open your eyes and see things as they really are.

Practice makes perfect.

Q uitters never win and winners never quit.

R ead, study and learn about everything important in life.

S top Procrastination.

T ake control of your own destiny.

Understand yourself in order to understand others.

Visualize it.

Want it more than anything.

X ccelerate your efforts.

Y ou are unique, nothing can replace you.

Zero in on your target, and go for it!!




PRECIOUS I pray You woke up this morning with a big smile on your face.remembering THANKS TO YOU so precious, I hope the sun is shining just for you YES EVEN IN THE RAIN TODAY AND THE SONG IN THE AIR and the birds are singing their very best songs...I hope your coffee is hot and tastes just right YES SWEET JESUS DUNCAN DONUTS
and the cats are purring contentedlyMEOW FRIEND,and the mailman waves a cheery hello and there are no bills in the mailbox.IF I NEVER GOT A BILL I WOULDNT HAVE TO MAKE MONEY SO ITS OK LOVELY..I hope that your day is filled with lovely surprises YES YOUR MSG and friends call you up just to say "Hi".AWWW THANKS..I hope you feel on top of the world with a spring in your step all day.YES ALL THE WAY..I hope just everything goes your way ...
I hope everything is well with your world,a place for everything and everything in its place...I hope you can enjoy all you do
and you are complimented on the way you look and you can laugh and talk and share to your heart's content...I hope you have all you wish for yourself and those dear to you,and all your dreams come true...At the end of the day I wish you a perfect moon shining just for you,a snug and cozy bed with the softest of pillows
and I hope you sleep like a lamb with a smile on your face..YES IN JESUS CARE.
I hope you have a perfect end to the perfect day OH YES TO YOU TOO and I hope that every day is just as wonderful in its own way...I hope your day is ...Filled with love.
John 3 repented of sins, even one lie and let Jesus into my heart to be my savior and best friend to help me, amen

peace to you in all your going through, David the sweet pea