What is the best known treatment for a desmoid sarcoma?

My daughter has a desmoid sarcoma in her calf -ankle it has been excised radiated and she has taken anti estrogen treatments. Now she is undergoing chemo therapy as this has returned several times. Drs believe it could sattelite if her leg was amputated. Thanks for your input

Desmoid tumors are not strictly sarcoma's because they do not generally metastastize. However, because they tend to reoccur and can be stubborn they probably should be treated by a sarcoma specialist.

For the latest treatment guidelines you can check the National Comprehensive Cancer Network Clinical Guidelines for Soft Tissue Sarcoma. There is a section for the treatment of Desmoid Sarcoma.
http://www.nccn.org/professionals/physic...

You should also consider joining a support group for Desmoid Sarcoma to keep up with latest treatment options and just for support!

ACOR: The Desmoid Tumor eCommunity
http://listserv.acor.org/archives/desmoi...

Desmoid Tumor Foundation
http://www.dtrf.org/

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