Have you or anyone you know had ewings sarcoma?

where did you have it and how old were you. My grandson had ewings sarcoma in his spine, he was diagnosed when he was 9 yrs old.

yes, the tibia bone, tumour grew at at an alarming rate.
refused amputation, had chemo and radiotherapy but eventually had leg amputated as got radiation burns that would not heal and constant pressure from family.

several of the children who were having chemotherapy at the same time as my son had Ewing's.One little girl had it on her spine just like your grandson. We occasionally meet up at clinic when we take Adam for check ups.

I haven't seen her for a while as after 7 years the appointments are getting further apart and we don't run into them as much.
She was doing well last time I saw her apart from the fact she tip toe walked a bit as a result of her surgery.

Having a child who has had cancer, in the family, is very hard on everyone.
We are lucky because we are seven years down the line.
My boy had Non Hodgkin's lymphoma.
Please feel free to email me if you would like to chat.

Tags

　　School Health 　　Schizophrenia 　　Scars 　　Scarlet Fever 　　Scabies 　　SARS 　　Sarcoma 　　Sarcoidosis 　　Salt 　　Salmonella Infections 　　Salivary Gland Disorders 　　SAD

Related information

Essiac I am diagnosed for uterine sarcoma. Can essiac work for me? I had a Tabso in September follo

i think you should do some research into Essiac. I have it daily - Try and get your hands on Phillip Day's book "Cancer- Why we're still dying to know the truth". or "T...

How do you deal with angio sarcoma ?

there are support groups such as the Sarcoma Alliance (...

Does anyone have info on ewings sarcoma of the bladder?

Ewings sarcoma can affect both the bone and soft tissue (sometimes called primitive neuroectodermal tumor (PNET) of the body. It is a rare cancer anyway, and it is very rare to have a Primary ewin...

What is the survival rate for sarcoma cancer?

...

Afraid of Aids and Kaposi's sarcoma?

A BRIEF HISTORY OF AIDS In the early 80's, doctors started seeing more and more people with suppressed immune systems coming into emergency rooms with several opportunistic infections. Thes...

What is the survial rate with Sarcoma cancer?

There are about 40 different types of sarcoma (cancer of the connective tissue such as blood vessels, muscles, bones, cartilage) so the first thing you need to do is ask the specific name of the sa...

HELP!!! Could this be a tendon sheath tumor or soft tissue sarcoma????

It would be unusual for it to be a sarcoma and be present for six months without pain, fever, malaise and other typical symptoms of cancer. Still, you should not have waited once the growth had bee...

Can ewing sarcoma cancer be lethal?

It all depends on the size and age of the tumor when it's found. Unfortunately, it can be a very aggressive tumor, and therefore CAN be fatal. Best of luck to your friend.

...