Does anyone have info on ewings sarcoma of the bladder?

i had a ewings sarcoma tumor on my bladder but all my research only says it is a type of bone cancer nothing on ewings tumor connected to the bladder

Ewings sarcoma can affect both the bone and soft tissue (sometimes called primitive neuroectodermal tumor (PNET) of the body. It is a rare cancer anyway, and it is very rare to have a Primary ewing's sarcoma of the bladder . . but it is not impossible.

If you go to Entrez PubMed which is part of the National Library of Medicine you can locate information about your specific disease:

http://www.ncbi.nlm.nih.gov/entrez/query...


1: J Urol. 1997 Dec;158(6):2265-6.
Primary Ewing's sarcoma of the bladder associated with an elevated antinuclear antibody titer.

Gousse AE, Roth DR, Popek EJ, Cooley LD, Horowitz ME.

Department of Urology, Baylor College of Medicine and Texas Children's Hospital, Houston, USA.

PMID: 9366372 [PubMed - indexed for MEDLINE]

The bladder is also a unique place for Ewings to metastasize, but, again it is possible as there have been previous reports:

1: Actas Urol Esp. 2004 Jan;28(1):70-4. Links
[Adrenal metastases of Ewing's sarcoma. Report of one case][Article in Spanish]
Rodriguez Corchero J, Medina Lopez RA, Barrero Candau R, Aguelles Salido E, Perez Espejo MP, Pascual del Pobil Moreno JL.
Servicio de Urologia, Hospital Universitario Virgen del Rocio, Sevilla.

Adrenal metastases are more frequent than primary adrenal carcinoma. The most frequent are, in this order: breast and lung cancer, stomach and kidney carcinomas, adrenal gland contralateral tumors and melanoma. Less frequent are tumours of the bladder, colon, esophagus, gall bladder, liver, pancreas, prostate, stomach and uterus. The rest of the tumours rarely spread toward adrenal glands. The metastases to the adrenal glands caused by sarcomas are rare and normally they happen in the contest of a massive metastases affecting several organs at the same time. We present a case of a patient affected by adrenal metastases of Ewing's sarcoma who has been referred to us for surgical treatment because it is a unique metastases (there is no sing of more illnesses in other organs at the time of the exploration).

PMID: 15046486 [PubMed - indexed for MEDLINE]

My son has a rare, aggressive soft tissue sarcoma that is related to Ewings Sarcoma called desmoplastic small round cell tumor. It predominately strikes boys and young adults and presents as multiple masses within the abdomen. Because it is rare there were few treatment options, so his oncologist used the protocol for Ewings sarcoma . . and it worked. :-)

Like you I have only been able to find Ewing's in reference to bones, however I think in your case the cancer started in the pelvic bone which is Ewing's sarcoma and spread to your bladder. Ewing's is a type of bone cancer but it can spread to other areas.

Ewing Sarcoma is a tumor of the bone found in children, adolescents, and young adults. If not diagnosed early, it may metastasize to other foci. So, your tumor in the bladder has come from an origin in the bone somewhere, possibly, in the pelvis. The origin has to be found, maybe, thru a bone scan with a radioactive isotope (eg. Gallium). About half of those treated with radio, chemo, and maybe, surgery combined, may achieve long-term disease-free survival. The prognosis decreases if it is metastatic. If your oncologist cannot find the primary focus, get a second opinion, especially the pathologist's report.