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Has anyone heard of fibroma sarcoma , it is from the genetic disorder nf1?


i have the gene disorder nf1 and had a 6cm tumour removed from my spine, the found out it was med. cancer

the tumour was removed before they realised it was cancer , they say its doubtfull it would have spread , but im doubtfull as ive others else where which are Very large and deep around my torsil

This link gives some good illustrations...

You have neurofibromatosis... Therefore you are more prone to get certain cancers such as fibrosarcs.
They can affect anywhere in your CNS, including spinal cord, brain, etc.....

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