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What is your experience with Sarcoidosis? |
I was recently diagnosed with Sarcoidosis and am wondering what others experience has been after being diagnosed. I have found that I am getting sick quite easily, basically catching every little bug that is going around and then some! Hi, I do not have sarcardosis, but run an online support group for people with autoimmune diseases. From what I researched and already knew about this illness I know that it mainly attacks the lungs, and unlike most autoimmune diseases, usually does not last forever, with treatment it may last about 24-36 months. It seems that you are getting ill from the illness itself, but possibly the treatments that you are on for it. My guess is you may be on drugs such as prednison, methotrexate,Rheumatrex, Trexall , or a medrol pack or a combo of these drugs. all which supress the immune system. making a person much more suseptibale to infection. Including colds, flus, viruses, even allergies. which once finished with treatments after 5-6 months your body should return to a normal immune function, and not be so easily suseptiable to those viruses and bacterial infections. Many people on these drugs, do tend to get ill easier then those who are not ill and not on them. Also over time, your body may build a tolerance and not catch every little bug, and make you ill, even while in treatment. But to get rid of the Sarcardosis, you do need these medications, and any other treatments your Dr has percribed. So you can get rid of this illness. Right now your own body has produced anti-bodies that are attacking themselves causing the Sarcardosis. But it wont be forever. I know MTV ex VJ Duff had it, and was rather ill for awhile. She made a full recovery within 2-3 years. And was happy she went through with the treatment, even with the side effects and discomport, she said it saved her. My mom has this... she's always in pain!!!! has to take meds alot. she does get sicker sometimes usually when she takes the prednisone...good luck. make sure you get good pain management.buy the way she is 57 yrs old and has had this for several years now!!!!! |
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