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Does anyone out there have Sarcoidosis? if so, do you experience major fatigue even after a good nights sleep?


I have Sarcoidosis of the Lungs and Lymph Nodes and possibly the joints.

While I do not have sarcoidosis, I can say that yes, people with sarcoidosis may certainly experience fatigue regardless of what some people claim as medical fact based just on what they have copied from a medical website.

While much of the symptoms will depend on the organ systems it is affecting, many people with sarcoidosis do have general constitutional symptoms including fatigue, malaise, fevers or night sweats, arthritis and weight loss. Much of this is thought to be due to the release of interleukins and cytokines by the cells involved with the process.

Depending on the specific organ system involved, you may have other symptoms or may have worsening of these primary symptoms including fatigue. For example, if you have pulmonary sarcoidosis and there has been a lot of scarring in the lungs, you may not get enough oxygen - this would lead to fatigue. If you have involvement of your heart leading to heart blocks, arrhythmias or congestive heart failure, that would also lead to feeling fatigued. So as you see it can be very organ-system dependent.

You may also have other medical problems not related to the sarcoid that can be contributing towards feeling fatigued. For example, if you were anemic (low blood count) that can make you feel fatigued. If you have problems with sleep apnea, that would lead to the same result. Certain medications also cause sleepiness as a side effect (for example, the antihistamines/allergy medications).

While the NIH website listed in the previous answers is a good site to get some basic information on sarcoidosis, you should really follow-up with your regular physician regularly and discuss these issues with him/her.

waht the heck is sarcoidosis?

Fatigue is not a sign or symptom of Sarcoidosis.

For more info:

Sarcoidosis (sar"koi-do'sis) involves inflammation that produces tiny lumps of cells in various organs in your body. The lumps are called granulomas (gran"u-lo'mahs) because they look like grains of sugar or sand. They are very small and can be seen only with a microscope.

These tiny granulomas can grow and clump together, making many large and small groups of lumps. If many granulomas form in an organ, they can affect how the organ works. This can cause symptoms of sarcoidosis.

Sarcoidosis can occur in almost any part of your body, although it usually affects some organs more than others. It usually starts in one of two places:

Lungs
Lymph nodes, especially the lymph nodes in your chest cavity.
Sarcoidosis also often affects your:

Skin
Eyes
Liver.
Less often, sarcoidosis affects your:

Spleen
Brain
Nerves
Heart
Tear glands
Salivary glands
Bones and joints.
Rarely, sarcoidosis affects other organs, including your:

Thyroid gland
Breasts
Kidneys
Reproductive organs.
Sarcoidosis almost always occurs in more than one organ at a time.

Sarcoidosis has an active and a nonactive phase:

In the active phase, the granulomas form and grow. In this phase, symptoms can develop, and scar tissue can form in the organs where the granulomas occur.
In the nonactive phase, the inflammation goes down, and the granulomas stay the same size or shrink. But the scars may remain and cause symptoms.
The course of the disease varies greatly among people.

In many people, sarcoidosis is mild. The inflammation that causes the granulomas may get better on its own. The granulomas may stop growing or shrink. Symptoms may go away within a few years.
In some people, the inflammation remains but doesn't get worse. You may also have symptoms or flare-ups and need treatment every now and then.
In other people, sarcoidosis slowly gets worse over the years and can cause permanent organ damage. Although treatment can help, sarcoidosis may leave scar tissue in the lungs, skin, eyes, or other organs. The scar tissue can affect how the organs work. Treatment usually does not affect scar tissue.
Changes in sarcoidosis usually occur slowly (e.g., over months). Sarcoidosis does not usually cause sudden illness. However, some symptoms may occur suddenly. They include:

Disturbed heart rhythms
Arthritis in the ankles
Eye symptoms.
In some serious cases in which vital organs are affected, sarcoidosis can result in death.

Sarcoidosis is not a form of cancer.

There is no known way to prevent sarcoidosis.

Sarcoidosis was once thought to be an uncommon condition. It's now known to affect tens of thousands of people throughout the United States. Because many people who have sarcoidosis have no symptoms, it's hard to know how many people have the condition.

Sarcoidosis was identified in the late 1860s. Since then, scientists have developed better tests to diagnose it and made advances in treating it.

my sis knew sum1 who had it and no they didnt

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