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Is anyone on this site been diagnosed with Sarcoidosis? |
I have what I thought was "heart/chest" pains, but after more than a couple of years, and NO diagnosable heart issues, I've come to realize it's more likely my lungs than heart and have several, but not all of the symptoms...it would be nice to get feedback from someone actually diagnosed with the disease. Don't try to diagnosis yourself. Lay people don't do a good job of it at all. Sarcoidosis is a very rare disease, and is not something generally considered when someone complains of chest pains. The lungs are usually not the cause of chest pains. Lung disease is manifested by shortness of breath, cough, sputum production, fever, primarily. You may well just be a "worry wart", someone with an anxiety disorder, who is constantly scared of having a heart attack or other life threatening disease, so you magnify the normal feelings in your chest to the point that you interpret it as chest pains. My aunt had it for years and was hospitalized for it a few times. About all they could do at that time was bed rest however treatments have gotten better since then. Hope you feel better soon. |
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hi steve.. Sorry to tell you the cause of sarcoidosis is not known. And, there may be more than one thing that causes it. Maybe there is problem with the immune system or maybe something else... You're welcome. I'm sorry but I don't know anything about MSU. There's some good info here: ... I don't know too much about it but; while my husband was a long term hospital patient, due to emphysema, I got to know another man with sarcoidosis (a patient in the next room). He was also in... I also suffer from sarcoidosis. Where is yours? Mine is not in the lungs, but in between the heart and lungs. I have a very large mass, that is putting pressure on the trachia now. I take large dos... Sarcoidosis (sar"koi-do'sis) involves inflammation that produces tiny lumps of cells in various organs in your body. The lumps are called granulomas (gran"u-lo'mahs) because the... My mum used cicatrix cream on her sarcoidosis scars and whilst it didn't remove them completely it did reduce them considerably. She got it on prescription but that was many years ago, it cou... My family member is 76 and has been treated for 12 years. The doctor tries new treatments all of the time. Sometimes nothing helps her pain. I go to the websites and read the chats to see what o... Hmm, well, doctor always have to give you a name of some excuse to make you feel you are sick. And prescribe you a medicine that will drive you crazy. Meanwhile they make billions. I would go healt... |
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