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I'm looking for info on sarcoidosis. Can anyone help me? I need to find a specialist who knows about this.


I have been to 3 different drs. who say even thought they are specialist(pulmanologists) that I am to far advanced for them to help me? HELP!

Hi call 020 7794 0500 and ask for sarcodosis help line, 2 consultants there deal with it

There is a support group on Yahoo. There are a lot of us there living with Sarcoidosis. Some longer than others. You can find answers there also.

Sarcoidosis_Support-subscrib... Report It

I don't know where you are located, so I will just include some links:
Both of the links below have organizations that help patients--especially the "rare disease" link.
http://www.nlm.nih.gov/medlineplus/sarco...

http://www.rarediseases.org/search/rdbde...

Clinical trials being run on Sarcoidosis:
http://www.clinicaltrials.gov/ct/search?...

Good luck.

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