My granddaughter is 8 years old. She has had a cancer called "rhabdomyosarcoma" for four years.?

She has had this cancer for four years. She went into remission and now the cancer is back. There are four stages and she is in stage four. Is there anyone out there that has had an experience with this that can share some info with me. Thanks!

God Bless your grandaughter and your family. I have no experience with this however, have you contacted St. Jude's Hospital????

Not this specific cancer, but I am familiar with sarcoma and childhood cancers. You might be interesed in joining the listserv email group as you will find support and information from others dealing with this type of cancer:

ACOR: Rhabdomyosarcoma (Cancer) Information and Support Group
http://listserv.acor.org/archives/rhabdo...

Rhabdo Kids
http://rhabdoidkids.com/index.html

Make sure that your granddaughter is being seen by a pediatric sarcoma specialist or at least at a sarcoma center. Many of the major sarcoma centers are also associated with a childrens hospital in order to treat kids with sarcomas.

http://www.sarcomaalliance.org/Main.html

http://liddyshriversarcomainitiative.org...

Best wishes to your precious granddaughter.

Go to immunemedicine.com. They help a lot of kids and my Dad and I are both patients. Best luck and God bless.

Well, that's rough. You may want to follow this link for online support groups.

http://www.google.com/search?hl=en&safe=...

Good luck.

Tags

　　Rodenticides 　　Rocky Mountain Spotted Fever 　　Tinea Infections 　　Ringworm 　　Rickets 　　Riboflavin 　　Rhabdomyosarcoma 　　Reye Syndrome 　　Rett Syndrome 　　Retinoblastoma 　　Retinal Disorders 　　Resuscitation Orders 　　Restless Legs

Related information

Parents with children who survived rhabdomyosarcoma?

Please try the story of Megan Hickey below. Rhabdomyosarcoma (RAB-doh-MY-oh-sar-COHM-uh) is a malignant tumor that arises in soft tissue anywhere in the body. It cannot arise in bone. It typically...

Can anyone tell me the best hospital and doctor to treat RHABDOMYOSARCOMA it is a cancer disease please help?

Not sure where you are located. In my opinion, Memorial Sloan Kettering Cancer Center is the best. ...

Who is familiar with Alveolar Rhabdomyosarcoma?

I am familiar with this courageous young man. He has been writing a blog about his disease for months. He is remarkable. I highly recommend to anyone interested to read his journals. There is a ...

Is there any latest method or any alternative method in the treatment of rhabdomyosarcoma?

Surgery to remove the tumor is often difficult or impossible because the tumor is usually embedded deep within the tissue, leaving it difficult to reach. If a tumor presents itself in the extremiti...

Rhabdomyosarcoma?

If you have not already joined the ACOR rhabidomyosarcoma listserv then you should. They currently have 270 members who are caregivers of kids with rhabdo. This is a private non commercial list. AC...

I am so scared of cancer.?

It's also very unpredictable. No one in my family had cancer. I never smoked, didn't drink, I was an athlete, even a soldier. Well, I still got cancer. But it's been 2 years sinc...