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Do some girls with Rett Syndrome have some verbal language?


My 3 year old daughter is being tested for Rett's, if she has it the geneticist said it is atypical Rett's. She does have some verbal language, although she communicates most by using a picture book and pulling me to things. She can say "more", "apple", "bear", and a few other things, especially if she has a picture cue and someone saying the word first (then she can try to repeat). I am just wondering if anyone out there knows of girls with Retts who have some verbal language as I can't find that information anywhere online. Thanks!

Hello! My 3 yr old daughter has Rett Syndrome! The answer is yes...there are several parents in my support groups who have said their girls have several words. I think some even put a few words together. My daughter's geneticist also doubted she had Rett Syndrome because of some untypical symptoms. I pushed for the test anyway and sure enough she does. Please email me privately and we can talk more!

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