i have always heard i will pass the disease on to my children but has anyone gone through the process with the disease? What were the results, and how? Greetings on World Retinoblastoma Awareness Week, May 13-19 2007! Please, tell your story so others know that a retinoblastoma is a childhood cancer and that it is an eye cancer which appears first as a white glint in one eye or both eyes or as squinting eyes of a child below four years of age. Tell everyone you know that this should be reported immediately to the eye doctor to save the child's life, protect the child's eyes and vision.
The Hindu newspaper reported in 2004 the remarkable work of Dr Brenda Gallie of Canada to identify the gene that causes this dreadful disease in children. Her team's fantastic research has made it possible to deliver the foetus four weeks prematurely and laser the tumor in the eye(s) while still small in size. YES, it is possible for you, a survivor of retinoblastoma, to have a child AND protect it from eye cancer. To make that happen you must first visit an ocular oncologist in any of the renowned eye hospitals in India and seek appropriate medical advice. I haven't gone through it, but I'm a Hospice nurse with a Master's in Nursing education.
Yes, it's a genetic disease and the chances of it being passed on is currently 1 in 4. It's up to you whether or not you want to take that risk. I wish you all the best. :) | 