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How can I reach "National Organisation for Rare Diseases?


fibromyalgia

www.rarediseases.com

type what you said in your search, it should come up.

this is their web site http://www.rarediseases.org/

Contact NORD

Mailing Address:
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968

Phone Number:
(203) 744-0100
Tollfree: (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590

Fax Number:
(203)798-2291

E-mail Contact:
orphan@rarediseases.org
Please note that we are unable to open unexpected e-mail attachments. If you must send us an attachment, please notify us first.

If you have questions related to providing care or accessing services for someone with a rare disease, write to: RN@rarediseases.org.

If you have a question related to genetic testing or the inheritance patterns of diseases, write to: genetic_counselor@rarediseases.org.

It will help us provide a faster response if you send your question to just one of the three e-mail addresses listed above.

How Did You Hear About NORD?
We appreciate your visit to our Web site. Please send us an e-mail to let us know your country of origin and how you heard about NORD. We'll also welcome any comments or suggestions you may have regarding our Web site.

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