Does Any one no any thing about rare mussel diseases?

my friend has a rare mussel disease and had it in remission but last year got bit my a tick and it made the disease get wose and now she cant walk are even stand up so does any one no any thing to do.
P.S its in the mussel so its not contagious and its called drumadomyosites and just so you no that my be spelled wrong becuse it is rare one in every three millon Chiladren get it and it dont have a cure but it does go in remission.

if it helps any is relly me that has a rare mussel diseases and im 13 i,v had it sence i was 5 or 6

Hi, I think you should go to google and enter dermatomyositis in the search you should get alot of information. Also your spelling makes it really difficult to understand your questions so make sure to use the spell check. I copied this for you.

In addition to medications, patients should take several precautions to prevent complications related to myositis and its treatments. These precautions include:

Osteoporosis prevention 鈥?A calcium supplement (1500 mg) with vitamin D (800 mg), and a calcium anti-resorptive agent such as alendronate (Fosamax庐), risedronate (Actonel庐), etidronate (Didronel庐), ibandronate (Boniva庐), pamidronate (Aredia庐) or calcitonin are recommended, especially for postmenopausal women and those on high-dose glucocorticoids.
Exercise 鈥?Physical therapy and rehabilitation should begin soon after the diagnosis of dermatomyositis or polymyositis to prevent contractures (shortening of the muscle that can limit joint motion). Patients who become bed or chair bound should move or be repositioned frequently to avoid pressure sores.
Avoidance of sunlight 鈥?Patients with dermatomyositis and rash should protect themselves from the sun with sunscreen or by sitting in a shaded area.
Preventing aspiration 鈥?Patients who have difficulty swallowing must take care to avoid inhaling (aspirating) foods and drinks. This may be done by elevating the head, using thickened drinks, or in severe cases, by placing a feeding tube.
Prognosis 鈥?The severity of disease in dermatomyositis and polymyositis is highly variable, ranging from mild weakness that responds well with treatment to a rapid progression of symptoms that is unresponsive to all treatments. Patients may spontaneously improve without treatment, although it is not known how often this occurs.