I want to do a project...but i need a rare disease to to it on! got any ideas Hydradenitis Supuritiva - You think your acne was bad...check this out...
Scleroderma - When skin mutinies...
You can go to the link below and take your pick, but these are my two diseases of interest. I know someone with each disease. Restrictive cardiomyopathy
This is the rarest form of heart disease.
Since heart disease is in the spotlight this may be a cool spin Kawasaki Syndrome Amyotrophic lateral sclerosis Creutzfeldt-Jakob disease(CJD)
, it is rare and only occurs in about one out of every one million people Acrocephalosyndactylia
Acrodermatitis
Addison Disease
Adie Syndrome
Adiposis Dolorosa
Alagille Syndrome
Amylose
Amyotrophic Lateral Sclerosis
Angelman Syndrome
Angina Pectoris, Variant
Angiolymphoid Hyperplasia with Eosinophilia
Arnold-Chiari Malformation
Arthritis, Juvenile Rheumatoid
Asperger Syndrome
Bardet-Biedl Syndrome
Barrett Esophagus
Beckwith-Wiedemann Syndrome
Behcet Syndrome
Bernard-Soulier Syndrome
Bloom Syndrome
Bowen's Disease
Brachial Plexus Neuropathies
Brown-Sequard Syndrome
Burkitt Lymphoma
Carcinoma 256, Walker
Caroli Disease
Chagas Disease
Charcot-Marie-Tooth Disease
Chediak-Higashi Syndrome
Chiari-Frommel Syndrome
Chondrodysplasia Punctata
Choreatic Disorders
Churg-Strauss Syndrome
Colonic Pseudo-Obstruction
Colorectal Neoplasms, Hereditary Nonpolyposis
Craniofacial Dysostosis
Creutzfeldt-Jakob Syndrome
Crohn Disease
Cushing Syndrome
Dandy-Walker Syndrome
De Lange Syndrome
Dementia, Vascular
Dermatitis Herpetiformis
DiGeorge Syndrome
Diffuse Cerebral Sclerosis of Schilder
Duane Retraction Syndrome
Dupuytren's Contracture
Dysautonomia, Familial
Ebstein's Anomaly
Ehlers-Danlos Syndrome
Eisenmenger Complex
Ellis-Van Creveld Syndrome
Encephalitis
Enchondromatosis
Epidermal Necrolysis, Toxic
Fabry Disease
Facial Hemiatrophy
Factor XII Deficiency
Fanconi Anemia
Felty's Syndrome
Fibrous Dysplasia, Polyostotic
Fox-Fordyce Disease
Friedreich Ataxia
Fusobacterium
Gardner Syndrome
Gaucher Disease
Gerstmann Syndrome
Giant Lymph Node Hyperplasia
Gilbert Disease
Glycogen Storage Disease Type I
Glycogen Storage Disease Type II
Glycogen Storage Disease Type IV
Glycogen Storage Disease Type V
Glycogen Storage Disease Type VII
Goldenhar Syndrome
Goodpasture Syndrome
Guillain-Barre Syndrome
Gynatresia
Hallermann's Syndrome
Hallervorden-Spatz Syndrome
Hamartoma Syndrome, Multiple
Hand-Schueller-Christian Syndrome
Hartnup Disease
Hemoglobinuria, Paroxysmal
Hepatic Vein Thrombosis
Hepatolenticular Degeneration
Hereditary Motor and Sensory Neuropathies
Hippel-Lindau Disease
Hirschsprung Disease
Histiocytic Necrotizing Lymphadenitis
Histiocytosis, Langerhans-Cell
Histiocytosis, Sinus
Hodgkin Disease
Horner Syndrome
Huntington Disease
Hyperaldosteronism
Hyperostosis, Diffuse Idiopathic Skeletal
Hypopituitarism
Inappropriate ADH Syndrome
Intestinal Polyps
Isaacs Syndrome
Jaundice, Chronic Idiopathic
Kallmann Syndrome
Kartagener Syndrome
Kearns-Sayer Syndrome
Keratosis Follicularis
Klinefelter Syndrome
Klippel-Feil Syndrome
Klippel-Trenaunay-Weber Syndrome
Kluver-Bucy Syndrome
Korsakoff Syndrome
Lafora Disease
Lambert-Eaton Myasthenic Syndrome
Landau-Kleffner Syndrome
Langer-Giedion Syndrome
Leigh Disease
Lesch-Nyhan Syndrome
Letterer-Siwe Disease
Leukodystrophy, Globoid Cell
Li-Fraumeni Syndrome
Long QT Syndrome
Lymphoma, Mantle-Cell
Machado-Joseph Disease
Mallory-Weiss Syndrome
Marek Disease
Marfan Syndrome
Meckel Diverticulum
Meige Syndrome
Melkersson-Rosenthal Syndrome
Meniere's Disease
Mikulicz' Disease
Miller Fisher Syndrome
Mobius Syndrome
Moyamoya Disease
Mucocutaneous Lymph Node Syndrome
Mucopolysaccharidosis I
Mucopolysaccharidosis II
Mucopolysaccharidosis III
Mucopolysaccharidosis IV
Mucopolysaccharidosis VI
Mullerian Ducts
Multiple Endocrine Neoplasia Type 1
Munchausen Syndrome by Proxy
Muscular Atrophy, Spinal
Nelson Syndrome
Nephritis, Hereditary
Nephroblastoma
Neuroaxonal Dystrophies
Neuromyelitis Optica
Neuronal Ceroid-Lipofuscinosis
Niemann-Pick Diseases
Noonan Syndrome
Optic Atrophies, Hereditary
Osteitis Deformans
Osteochondritis
Osteochondrodysplasias
Osteolysis, Essential
Paget's Disease, Extramammary
Paget's Disease, Mammary
Panniculitis, Nodular Nonsuppurative
Papillon-Lefevre Disease
Paralysis
Pelizaeus-Merzbacher Disease
Pemphigus, Benign Familial
Penile Induration
Pericarditis, Constrictive
Peroxisomal Disorders
Peutz-Jeghers Syndrome
Pick Disease of the Brain
Pierre Robin Syndrome
Pigmentation Disorders
Pityriasis Lichenoides
Poikiloderma Congenitale
Polycystic Ovary Syndrome
Polyendocrinopathies, Autoimmune
Prader-Willi Syndrome
Progeria
Pulmonary Fibrosis
Pupil Disorders
Raynaud Disease
Reiter Disease
Rett Syndrome
Reye Syndrome
Rubinstein-Taybi Syndrome
Sandhoff Disease
Sarcoma, Ewing's
Scheuermann's Disease
Shwartzman Phenomenon
Shy-Drager Syndrome
Sjogren's Syndrome
Sjogren-Larsson Syndrome
Smith-Lemli-Opitz Syndrome
Spinal Muscular Atrophies of Childhood
Stevens-Johnson Syndrome
Sturge-Weber Syndrome
Sweating, Gustatory
Sweet's Syndrome
Takayasu's Arteritis
Tangier Disease
Tay-Sachs Disease
Thromboangiitis Obliterans
Thyroiditis, Autoimmune
Tietze's Syndrome
Togaviridae Infections
Tolosa-Hunt Syndrome
Tourette Syndrome
Turner Syndrome
Uveomeningoencephalitic Syndrome
Waardenburg's Syndrome
Waldenstrom Macroglobulinemia
Wegener's Granulomatosis
Weil Disease
Werner Syndrome
For more; visit the below link:
http://www.hon.ch/HONselect/RareDiseases... Hand Schuller Christian syndrome. I have syringomylemia. That is rare enough that the Neurosurgeons who are supposed to help us with that, are rare and hard to find. To find out more about this rare disease, go to ASAP.org. Sign in, it is free, and read all about it. Chiari is listed as well................they are rather a lot alike! KURU is one of the rarest diseases. it was seen in the african tribals group. the disease affects the nervous system- Brain.
In older days, it was believed by them, that if they eat the brain of the deceased, they will be able to acquire the wisdom from them. So they cut open the head and take the brain and consume it. Check out
http://www.rarediseases.org/
This is the site of the group that keeps track of rare diseases.
You can not only get a name, but also a whole bunch of information on what the disease is, what causes it, how it's treated, how many people get it, and so on.
One-stop report research. |
