Does anyone have information on rare renal disease called Idiopathic Collapsing Glomeralpathy(ICG)?

It is a disease that is not very common and as far as I know there is no cure but to go through dialisis and then renal transplant and hope that it does not reject that kidney as well... my daughter is 9 and diserves to have a chance at life so there fore I am looking for answers from anyone I can find it at... I don't want to wait for her to go through this if I can stop it I want to stop it.

Ok maybe I did not make myself clear she is already seeing a speciallist... I am looking into finding someone who might be able to point me towards a clinic or college that has information about this disease because noone here knows anything including the wonderful doctor treating her

dear im sorry for that .. i've been an hour searching for any info. about this disease but no results . i think u should check the spelling of it .
and i'll keep trying to find out any information

you need to be discussing this with a top of the line nephrologist.

please don't take the advice of anyone here.

you can search the web, as i just did. it may help you put together a list of questions for your child's doctor.

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