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| Rare Diseases |
| Llist rare diseases? |
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| What are some rare diseases out there? |
Celiac
This is widely known about in other countries, but rarely diagnosed here in the U.S.
statistics show that one in every few thousand people have this, but global statistics say the num... |
| Rare diseases? |
There is a National Organziation for Rare Diseases that has a terrific Web site.
You can find all kinds of obsure diseases there, along with the relevant stats.
... |
| Is there an actual title for a doctor who specializes in rare diseases? |
Though many MDs are also epidemiologists, for the most part, epidemiologists are scientists and not clinicians. At times (CDC is a good example), they work with clinicians to discover patterns of ... |
| Is there a list of people who have these rare diseases...? |
No, as that would violate medical privacy.
If you want to contact folks with those conditions, I recommend that you seek out internet forums/bulletin boards specific to the illness in question.<... |
| How can I reach "National Organisation for Rare Diseases? |
www.rarediseases.com ... |
| Does anyone know of any rare diseases or interesting/bizarre diseases I can look up for a project? |
Mermaid syndrome. That I am aware of, there is only one published case in recent history. That case has been featured on the discovery channel, where I first heard about it. A few years after th... |
| Website of very very rare diseases, syndromes, genetic deformities? |
Google the medical condition 'progeria'. ... |
| Rare diseases that cause itching? |
Allergies can cause itching as well as eczema.
Have you heard of lichen sclerosus, its a disease that menopausal women sometimes acquire and it is a rare itching disease. I provided you with a li... |
| Does Any one no any thing about rare mussel diseases? |
Hi, I think you should go to google and enter dermatomyositis in the search you should get alot of information. Also your spelling makes it really difficult to understand your questions so make su... |
| I have rare diseases. Some doctors diagnosed munchausen's, now I have recurrence of pre cancer, no doctor. |
Exactly what is the name of this rare blood disease? Also, on what basis was your pre-uterine cancer diagnosed? To my knowledge, there are no "pre-cancerous" lesions of the uterus - fib... |
| Any rare/interesting diseases? |
I don't have anything particularly interesting but my brother is afflicted with scleroderma. It has literally made his skin look like plastic. His poor hands! Lost flexibility. He has trouble ... |
| Does any know where I could find a list of the world's rarest diseases? |
You might try any of the following links: ... |
| Does any know any rare disease names? |
I can think of these:
Sjoerns
CMV
Batten Disease
Hope this helps! Good Luck ... |
| Rare Disease?? |
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| Plzzz help.....rare muscular system diseases? |
hkpp.org has info on a couple rare ones like I have. What is the one you need? Or are you looking up symptoms. mine is Periodic Paralysis. If that rings a bell or the symptoms you can write me.<... |
| What are some really rare unique mental diseases or disorders? |
Capgras' syndrome is the delusion that a loved one has been abducted and replaced by an exact duplicate, by (chose one) CIA, Russians, aliens, neighbors.
For other mental oddities, you mi... |
| I need information on a rare genitic diseases that only Irish people get called Heleatic disease(sp?).? |
Do you mean Haemochromatosis ?
here is a link:
... |
| Is there a diseases that can spread by sharing the same drink as someone? is this disease rare or common? |
Good way to catch a cold for sure. Share a glass with someone who has one. ... |
| What are rare and incurable heart diseases? |
Most any heart disease is incurable to me. I have had 4 heart attacks, bypass surgery and pacemaker with defibrillator and constantly have fluid retention. I take blood thinner, diuretics and muc... |
| What is a good website where I can find in details lists, and syptoms of rare diseases? |
www.nih.gov ... |
| How to deal when you have a rare disease? |
My life is also one of many doctors, many diseases and disorders, for many years now. I thought I was the only one nearing the end of my rope as far as having to see doctors, take medications and ... |
| Has anyone gotton a rare disease from trauma-car accident? |
i have a condition called frozen shoulder ... |
| What is an extremely rare genetic disease? (not disorder)? |
Osteogenesis Imperfecta. Extremely rare genetic disease breakable bones. ... |
| Name a rare disease? |
Hydradenitis Supuritiva - You think your acne was bad...check this out...
Scleroderma - When skin mutinies...
You can go to the link below and take your pick, but these are my two diseases o... |
| Need info on rare disease? |
I'm sorry to hear about your mom. Washing the blood like you describe is called plasmapheresis, also called plasma exchange. The Merriam-Webster dictionary gives this definition:
"Mai... |
| Rare disease; PLEASE read!? |
GO TO THIS SITE AND IT WILL TELL YOU SO MUCH MORE ABOUT IT
... |
| Disease that's rare...any advice or links? |
You may be talking about scleroderma. Try a search for that and see if it fits. it isn't really that rare. You won't get all the information you're looking for, though, because of th... |
| A rare disease, That crystalizes the Lungs? |
There are so many lung diseases. It would be best for you to check with your aunt to know for sure. If it is inherited, you have a right to know this information. ... |
| Seek cancer doctor who treats rare blood disease and gyn pre cancer.? |
Contact a local medical social worker who should be able to guide you in locating help. The following websites will get you started on how to locate a social worker in your area.
Social Workers:... |
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