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Starting radiotherapy+temodar for glioblastoma multiforme,any need for prophylaxis against pneumocystis carini |
i am 32 years,female My husband had ogliodendroglioma stage3 about 4 years ago. He is doing fine now. He had the tumor removed and entered a clinical study at Henry Ford Hospital Detroit. One thing that I was taught by another cancer survivor. Take hand towels out of the bathroom. Replace with paper towels. Really helps with germs. Be careful not to take any vitamins that your doc does not know about. Vitamins can stop the temodar from working they way it should. You are in my prayers. God Bless. Immunosuppressive drugs can make you susceptible to a wide variety of organisms. You may need to follow the advice of your physician to determine what your risks are. A fella I worked with had CLL (chronic lymphocytic leukemia) and avoided public places with large crowds, took his own silverware and plates to public restaurants when dining out, and yelled at his coworkers whenever they coughed or sneezed (before he shared the info of his condition with us!). Wearing a mask when you go anywhere may seem weird, but is often a very necessary and not too difficult protection. Avoiding children may be very helpful because they are wonderful breeders of every imaginable virus and/or bacteria! Radiation to the head is only local side effects. Temodar causes some bone marrow depression, baldness and other chemo effects. I personally have never treated prophylacticly for Pneumocystis, and have only seen it in AID patients. I think it might only complicate side effects. There's growing support for PCP prophylaxis on patients treated with temodar, as it is associated with prolonged lymphopenia. It is now the standard of care at Memorial Sloan-Kettering in NYC to give prophylaxis, either with bactrim or aerosolized pentamidine. Good luck!!! Visit my website |
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