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Does anyone else suffer from Idiopathic Pulmonary Fibrosis (IPF)? |
I have IPF and am looking for others with this problem. Hereis a list of other commonly used names for IPF: Hi, my dad was just diagnosed with IPF a few days ago. He doesn't want people worrying about him but my sister and I are just trying to find out as much information as possible about it. I'm not sure if my dad is ready to talk to others with the same condition yet, but I will encourage him to join this group nonetheless. I too have had my husband diagnosed with pulmonary fibrosis. I sure need someone to help me Report It I have a sister-in-law who has spontaneous God awful coughing fits that last for 10 mins and exhaust her. Her lung capacity is also only 50%. So far, the only dx has been asthma or maybe COPD, but no one seems able to dx her problem. It is awful to be around her and see her suffer with this. |
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Try exploring this site for lots of information. There are many links ..even one to support groups. Good Luck and God Bless you and your Mum. I'll keep you both in my prayers. ... My mother died from it. If I had it I would try taking 400 iu of Vitamin E 3x daily and MSM 1-2 grams 4x daily. This may (no guarantees) slow down the scarring process. ...... There are two organizations in the United States that may be able to help. They are: ... I have pulmonary fibrosis so I know what your loved one is going through. Perhaps I can help out a little. First, he is not alone. There are over 200,000 of us in the United States who suffer fr... Macrodantin Respiratory: CHRONIC, SUBACUTE, OR ACUTE PULMONARY HYPERSENSITIVITY REACTIONS MAY OCCUR. CHRONIC PULMONARY REACTIONS OCCUR GENERALLY IN PATIENTS WHO HAVE RECEIVED CONTINUOUS TREA... What is Pulmonary Fibrosis? Pulmonary Fibrosis involves scarring of the lung. Gradually, the air sacs of the lungs become replaced by fibrotic tissue. When the scar forms, the tissue becomes th... Many times treatment is limited only to treating the inflammatory response that occurs in the lungs with the pulmonary fibrosis. This is done in the hope that stopping the inflammation will prevent... |
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