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Does anyone else suffer from Idiopathic Pulmonary Fibrosis (IPF)?


I have IPF and am looking for others with this problem. Hereis a list of other commonly used names for IPF:

- Alveolocapillary block
- Cryptogenic Fibrosing Alveolitis
- Diffuse Fibrosing Alveolitis
- Fibrosing Alveolitis
- Hamman-Rich Syndrome
- Interstitial Diffuse Pulmonary Fibrosis
- Idiopathic diffuse interstitial pulmonary fibrosis
- Pulmonary fibrosis of unknown cause
- Pulmonary fibrosis
- Cryptogenic fibrosing alveolitis
- Usual interstitial pneumonitis
- Diffuse fibrosing alveolitis


The following links describe the condition:

http://www.webmd.com/a-to-z-guides/Idiop...

http://www.nhlbi.nih.gov/health/dci/Dise...

Hi, my dad was just diagnosed with IPF a few days ago. He doesn't want people worrying about him but my sister and I are just trying to find out as much information as possible about it. I'm not sure if my dad is ready to talk to others with the same condition yet, but I will encourage him to join this group nonetheless.

Good luck to you--
-- giulia

I too have had my husband diagnosed with pulmonary fibrosis. I sure need someone to help me Report It

I have a sister-in-law who has spontaneous God awful coughing fits that last for 10 mins and exhaust her. Her lung capacity is also only 50%. So far, the only dx has been asthma or maybe COPD, but no one seems able to dx her problem. It is awful to be around her and see her suffer with this.

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