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Anyone know anything about pulmonary fibrosis? |
Husband has been diagnosed and need some support and feed back from others. pumonary fibrosis is a restrictive airway disease (there are two types of airway diseases copd is obstrucitve) http://www.pulmonaryfibrosis.org/ipf.htm The link sent above contain basic information, but I am sorry to say that it is not an easy disease. It is usually progressive and in some point the patient will need oxygen support and may need several hospitalizations and even ICU. I think the best option is to get enrolled in a clinical trials that try new medications on patient as there is no any known effective treatment now adays. Go to the nearest university hospital and ask there or check the American Thoracic Society. Good luck. |
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Gee.....why not get another doctor? Problem solved. ...It appears that the question period has expired. If you have received an answer that meets your needs, please choose one of those as a 'best answer.' If you haven't received a good... Pirfenidone is an orally active small molecule drug that may inhibit collagen synthesis, down regulate production of multiple cytokines and block fibroblast proliferation and stimulation in respons... His prognosis is quite grave. The worst thing about his condition is that it is irreversible...With such poor pulmonary function parameters it is questionable if providing oxygen by conventional me... Sorry to hear about your diagnosis. I was diagnosed almost 5 years ago and given 18 months to live. The doctors tried steroids and Interferon, but no success. I was living in a city at higher el... First, let me say how sorry I am to hear that your father has pulmonary fibrosis (PF). I speak from experience - I have PF and was diagnosed in 2003 and given about 18 months to live. As you can ... It depends on how bad the PF is had if they have underlying diseases along with it. Overall health is a factor too. But they can live along time with treatment. Jerry Lewis, who is all over ... What Is IPF? Some Basic Facts Idiopathic pulmonary fibrosis (IPF) is a debilitating disease marked by progressive scarring of the lungs that gradually interferes with a person's ability to b... |
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