mcrh.org
*Home>>>Pulmonary Fibrosis

Anyone know anything about pulmonary fibrosis?


Husband has been diagnosed and need some support and feed back from others.

pumonary fibrosis is a restrictive airway disease (there are two types of airway diseases copd is obstrucitve)
Pulmonary fibrosis is most often caused by stuf that comes from the workign enviroment ie: the coal miners have black lung which is pulmonary fibrosis.
it is not curable, however with the right docs (pulmonologist only) they can make him breathe a lot better
I am a daugter of a coal miner who had black lung, and lung cancer, I lost him when I was 12, and now because of being around so many people who have sufferend black lung I am a Respiratory Therapist, so I can help people who were like my father.

Imagine the lungs having sacs of grapes in them (the alveoli) with fibrosis the stuff being coal dust, silica, etc acts like a cement in the walls of the alveoli, making them very stiff. This in turn makes it very hard for the person to breathe.

http://www.pulmonaryfibrosis.org/ipf.htm

The link sent above contain basic information, but I am sorry to say that it is not an easy disease. It is usually progressive and in some point the patient will need oxygen support and may need several hospitalizations and even ICU. I think the best option is to get enrolled in a clinical trials that try new medications on patient as there is no any known effective treatment now adays. Go to the nearest university hospital and ask there or check the American Thoracic Society. Good luck.

Tags
  Rabies   Quackery   Q Fever   Pyelonephritis   PXE   Pulmonary Fibrosis   Pulmonary Embolism   Puberty   PTSD   Psychotic Disorders   Psychiatric Disorders   Psoriasis
Related information
  • My disease is interstitial pulmonary fibrosis and I cannot take the two drugs that help delay the disease?

    Gee.....why not get another doctor? Problem solved.

    ...
  • Natural cures for pulmonary fibrosis?

    It appears that the question period has expired. If you have received an answer that meets your needs, please choose one of those as a 'best answer.' If you haven't received a good...

  • Where can the pulmonary fibrosis medication pirfenadone be purchased?

    Pirfenidone is an orally active small molecule drug that may inhibit collagen synthesis, down regulate production of multiple cytokines and block fibroblast proliferation and stimulation in respons...

  • My dad has Pulmonary Fibrosis, and his lung capacity is 32%,and oxygen is 85. Anyone know how bad that is?

    His prognosis is quite grave. The worst thing about his condition is that it is irreversible...With such poor pulmonary function parameters it is questionable if providing oxygen by conventional me...

  • I was diagnosed with interstitual pulmonary fibrosis. Are there any natural products to address this ?

    Sorry to hear about your diagnosis. I was diagnosed almost 5 years ago and given 18 months to live. The doctors tried steroids and Interferon, but no success. I was living in a city at higher el...

  • My dad is in the hospital with pulmonary fibrosis can you explain how serious this is?

    First, let me say how sorry I am to hear that your father has pulmonary fibrosis (PF). I speak from experience - I have PF and was diagnosed in 2003 and given about 18 months to live. As you can ...

  • How long can a person live wit pulmonary fibrosis?

    It depends on how bad the PF is had if they have underlying diseases along with it. Overall health is a factor too. But they can live along time with treatment. Jerry Lewis, who is all over ...

  • What is the difference between ipf and pulmonary fibrosis.?

    What Is IPF? Some Basic Facts Idiopathic pulmonary fibrosis (IPF) is a debilitating disease marked by progressive scarring of the lungs that gradually interferes with a person's ability to b...

  •  

    Categories--Copyright/IP Policy--Contact Webmaster