I'm terrified!?

I have Lupus (diagnosed 9 years ago) and today I was just diagnosed with pulmonary fibrosis. I know that Lupus effects internal organs, but I wasn't expecting this! How long can one live with Pulmonary fibrosis? How long before it becomes deadly?

I was in such shock that I couldn't think of any questions to ask my doctor. I have another appointment in 3 weeks, but I'd as much info as possible.

Hi I know your scared, I have had a rather serious case of Lupus for close to 20 years and Im only 40. I had 5 months of chemo this summer for swelling of the brain, have almost been put on a liver transplant list a couple times, and much more, but the good thing, is Lupus flares and remits, the thing about your condition, is how far advanced it is, what your diet is like, do you have any physical activity, and what type of relationship do you have with your dr? you can live a long time with proper care, diet and support, however some lifestyle changes may need to be done. Maybe you need a serious sit down with your doctor, to get all the facts. Even with the seriousness of our Lupus, today Lupusis not the death sentance it once was, there are medications, diet changes, and other methods, of controling it. Besides, even you condition can so called flare (be real nasty) and remit (not so bad). I suggest a good meeting with specialist.

xxxx

http://www.pulmonaryfibrosis.org/ipf.htm

go to www.pulmonaryfibrosis.org/ipf.htm

Sending good thoughts your way,
Stacie