Does anyone have pheochromocytoma? or know of anyone with this?

I have been plagued by all of the symptoms and am now awaiting the results of the tests. (If it's not this then I don't know what I will do...) THey have even said it's just "panic or anxiety attacks... I know that it's not that. I am not the panicky person and the symptoms are so real and scary. sweaty, shaky, weird feeling floods thru veins, blood pressure goes way up and pulse also. Headache and cold tingly hands and feet. Also mouth is numb and doesn't want to work very well. I have been tested for diabetes and have been taking my sugars and they are fine. They sent me home from the hospital with Ativan to take when these "episodes" start...I don't want a tranquilizar I want to feel normal. Any advise would be helpful.

I doubt you have pheochromocytoma as it is very rare but I guess it can do no harm in having the tests done. Lorazepam (ativan) is highly addictive and not the safest of drugs to be taking. I would strongly recommend that you read this page http://www.benzo.org.uk/manual/ and also this page http://www.benzo.org.uk/ashbzoc.htm

I wonder if your symptoms could be drug induced either you stopped a medication too quickly and got withdrawal effects or an adverse reaction either a side effect or from prolonged usage. Also your symptoms could also appear in some who is using excess alcohol It is good that you are actively trying to rule out medical causes for your symptoms with your doctors help but I could look into other things.
You could also try cutting out caffeine, aspartame and alcohol to see if any of those symptoms above calm down. Research any drugs that you are currently taking especially ones that work on the central nervous system and also research any drugs that you took or stopped taking around the time of onset of the symptoms.