Need Medical Assistance for a friend...?

Epidermolysis Bullosa Simplex (Koebner's Disease). Celiac's Disease. Pancreatic Issues - Sphincter of Oddi Dysfunction.

These are the diagnoses' given to my friend after several years of sufffering. Now her doctors, upon giving the final two diganoses', don't want to treat her, instead sending her to the ER when she has problems. The ER admits her, pumps her full of narcotics, only to release her days later, addicted to pain meds and to detox alone at home.
This is getting stupid! Why won't a doctor spend some real time with her, get to know her as a person, get to know her medical history? She is not a file of paper!!
Does any one have any useful suggestions on how to go about getting respected by these doctors? She's back in the hospital again (4th time in the last 6 months!) and on narcotics. This is not the way she wants to live her life. She has 3 girls and a husband at home!!
Please help?!

I know people with celiac disease have to eat gluten free foods.
There are lots of food and medication that have gluten in them.
Celiac disease causes a lot of digestive pain if a gluten free diet is not followed.
She should probably go to a major medical school hospital where they have the cutting edge treatments.

Tags

　　Parathyroid Disorders 　　Parasitic Diseases 　　Paranasal Sinus Cancer 　　Paralysis 　　PAP Smear 　　Panic Disorder 　　Pancreatic Diseases 　　Pancreatic Cancer 　　Pancreas Transplantation 　　Palliative Care 　　Painkillers 　　Pain Chest 　　Pain Relievers

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