My husband was diagnosed with PXE. I am not going to give the meaning of the letters, because if you have it, you KNOW what they mean. Anyway, his eyes are getting worse even though we have had all the latest treatments. He is only 47. Also, I have got him a loofa pad and some very expensive shower lotion to use for his skin, but it seems to be getting worse. We have even bought some extra creamy lotion from Bath & Body Works that he is using. I am just very concerned about him and wondered if there is anyone else out there going through this with their husband. I know it is extremely rare, but I thought I would give it a shot. Thank you, I do not have PXE but the website www.pxe.org had some interesting and seemingly helpful information, I hope everything goes well. |
