Does anyone have PKU on here?

Me and my 8-year-old sister do. I also have 5 siblings who don't have PKU. I drink Vitaflo PKU express coolers (orange and purple) and XPhe Maxamum juice boxes (Orange and berry). My sister drinks Phenex 2 unflavored and we're both allowed 300mg of Phe a day (or 20 exchanges).

I've tried soooo many formulas and back in Sept I finally settled on the formulas I'm taking now. If you ever want to email me go right ahead. I think if you click my name it'll take you to my profile and it has my email address there. Report It

Whats PKU if that answers your questionds and why are they canceling Passion!!!! Nooooo i cant believe it i luv that show!!!!! and i think the reason chris beniot killed his family and him self steriods!!!!! srry but its the truth plz be my contact!! plz i added you and check out my description!!

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Related information

I have PKU Disease... Does anyone else?

About this disease, here :- ...

What does PKU stand for?

phenyllketonuria- I believe it's a disease that causes mental retardation in children the website below tells you all about it

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Is PKU found after the age of 15?

Phenylketonuria is related to a form of a metabolic disorders and it deals with the protein levels in the body system. It is also a rare condition that both parents must be carriers and that is sti...

Famous people that have died of PKU.?

I couldn't find such a list. Maybe you can here: ...

My 2 year old daughter appears to have an allergy to Phenylalanine should I be worried about PKU?

Absolutely not! You are being a responsible parent.

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What should the protein level be for a 1 month old baby with pku?

my son has classic pku, he is 21 months old and the amount has not changed, he was born about 6 pounds and is now about 32. the safe range is approximately between 2 and 10 mg/dl (phenylalanine),...

I have a 8 mo. old with pku and was wondering if i can get ssi for him ?

Is your child covered by private health insurance, or is he on medicaid or a similar public health program/ If he is on a public (welfare) type health care program, he may qualify for other progra...

How do I know if I got PKU?

My six year old daughter has PKU (Phenylketonuria). It was discovered by a standard natal screening test, developed in the sixties by a man who wasn't even a doctor. The test was developed and...