Does anyone have a baby with a seizure disorder?

My 16 month old have been hospitalized 6 times. The first being in April, and the last this month (Oct). All of her visits were from seizures. To start with the doctors were calling them febrile sz. Now some doctors are calling it epilepsy. We have followed up with genetics and pediatric neurology. My daughter's sz used to last over 30 mins. having to be stopped with ativan and twice she had to be intubated. After her 3rd and very scary sz, the neurologist started her on Trileptal. She is now on Keppra and Trileptal. She is still having sz's but they are a lot shorter. One doctor says that because she had so many febrile sz, she developed epilepsy. She also suffers from developmental delay. At 16 months old, she is neither crawling or trying to talk. She does physical, speech, and occupational therapy weekly. I am also working on getting her a 2nd opinion with a different neurologyst. I really wish there was someone I could talk to who has experienced something similar

HI Brooke

Here are some ideas to heal the issue.

Cause
Nutrient deficiencies, thyroid disorders, and stress can all contribute to epileptic seizures and must be screened for and addressed as part of a comprehensive treatment approach. Proper bowel movements two to three times a day are also important.
Consider a bowel cleanse to restore healthy bowel function.


Caution: If the individual's seizure does not stop within 5-10 minutes, seek immediate medical assistance. At the same time, be sure not to over-drug the patient, as medical drugs can actually trigger epilepsy due to their potential side effects.


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Natural Cures

Diet: Individuals affected by epilepsy should eat a low-fat, low-carbohydrate diet, and eliminate fried foods, salt, sugar, meat, milk, and alcohol. For long-term care, they should follow a hypoglycemic diet (see Hypoglycemia), being sure to avoid artificial sweeteners, excessive refined carbohydrates, and caffeine. For epilepsy accompanied by sluggish bowels or constipation, also ensure that the diet is rich with fibrous foods. And so a colon cleanse is needed.

Herbs: For petit mal epilepsy, take one teaspoon of skullcap tincture three times a day.

Hydrotherapy: Hydrotherapy is the application of water, ice, steam and hot and cold temperatures to maintain and restore health. Treatments include full body immersion, steam baths, saunas, sitz baths, colonic irrigation and the application of hot and/or cold compresses. Hydrotherapy is effective for treating a wide range of conditions and can easily be used in the home as part of a self-care program. Many Naturopathic Physicians, Physical Therapists and Day Spas use Hydrotherapy as part of treatment. I suggest several at-home hydrotherapy treatments.

Juice Therapy: Drink a combination of celery, carrot, and lettuce juice three times a day.

Nutritional Supplementation: The following nutrients can help minimize symptoms of epilepsy: L-taurine and L-tyrosine amino acids (500 mg three times daily) along with an amino acid blend (two times daily); vitamin B complex and vitamins B3 (niacin), B5, B6 and B12; calcium; choline (start with 4 g daily and increase to 10-12 g within three months); dimethyl glycine (100 mg two times daily); magnesium; manganese; and zinc. Vitamin B complex injected intramuscularly may also be helpful.

Note: Sometimes essential fatty acids aggravate symptoms, so consult with a nutritional expert to determine if this is the case.

Alternative Professional Care
If your symptoms persist despite the above measures, seek the help of a qualified health professional. The following professional care therapies have all been shown to be useful for treating and relieving the symptoms of epilepsy: Acupuncture, Ayurveda, Biofeedback Training, Bodywork, Chiropractic, Craniosacral Therapy, Detoxification Therapy, Environmental Medicine, Holistic Dentistry, Hypnotherapy, Magnetic Field Therapy, Meditation, Mind/Body Medicine, Naturopathic Medicine, Osteopathy, Reflexology, Traditional Chinese Medicine, and Yoga

Best of health to you

most kids are given Phenobarb for seizures.

I had a neighbor whose child had similar symptoms; He had been to many doctors, but no cure was found.
Then, I heard he was doing well. his mom showed me a bottle of probiotic tablets that the kid was taking, and he was drinking yogurt, 50 grams 3 times a day.
he had had an infection in his intestines which gave him such symptoms.