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Anyone else dealing with Lymphomatoid Papulosis ?


I have been battling this CTCL along with other cancer for over half my life and can't seem to get any improvement in my skin condition. I have tried total skin electron beam radiation and Targretin oral and topical all to know avail. Also underwent CHOP chemo for Non Hodgkin's Lymphoma which didn't improve my skin. It just seems like such a lonely disease .

You might already know this but there is a very active LP discussion group in Yahoo groups. The group currently has 571 members.

http://health.groups.yahoo.com/group/LyP...

good luck

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