| Neurofibromatosis |
| Anyone else have Neurofibromatosis? |
Condition in which there are tumors of various sizes on periphalnerves. They are also know as fibromas or neuromas ... |
| Just found out i have neurofibromatosis looking for any info on it..? |
Depends type one or type two? I have type one. For more info go here
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| What is life like with Neurofibromatosis and Things about Elephant Man? |
I have nf type one, while the elephant man had Proteus Syndrome, which is a worse then nf.
Here are some sites about nf that should help you out.
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| Are there any treatments for Neurofibromatosis? |
There is trial type stuff out there, but nothing that has shown any promise. But the univeristy of phenoix and chicigo are working together and they're might be something they can test on thos... |
| Can anyone tell me if Neurofibromatosis can be cured? |
Do you have NF1 or NF2? Go to your search bar and type in Neurofibromatosis and research the listed sites. You can also type in Alternative Treatments for Neurofibromatosis and see what options a... |
| Has anyone ever heard of neurofibromatosis before? |
It is amazing how prevalent a disease can be, and yet so unknown. Neurofibromatosis (NF) is the most common neurological disease caused by a single gene. Both forms, NF1 and NF2, affect more than 1... |
| What does a tumor from neurofibromatosis look like? and how do they feel, little bumps that are rough? thanks! |
yes, but unless you've had signs of neurofibromatosis from birth its unlikely you have it now. Far more likely is a benign solar keratosis - a raised rough warty greyish or brown lesion that a... |
| How Do I Cope With Neurofibromatosis Type 2 ? I Was Just As Of Thursday Diagnosed With It. Please Help? |
That sucks. I'm 23, but I have type 1, I was diagnosed with it when I was 15. I suppose you take one day at a time and hope, that a cure is found for it. ... |
| Has any one heard of neurofibromatosis? |
yes , my son had it and i hope you are being followed by a neurologist on a constant basis. its very important ..... ... |
| Is ther anybody with neurofibromatosis, and how do you feel about it? |
My boyfriend has it, and he's gone through a lot. Many surgeries over the years (and he's only 29) and a rough childhood with teasing and hospital stays. I think NF ultimately produces ... |
| Does anyone else have neurofibromatosis? |
I have NF and My entire back and neck are brown. My first surgery was 15 years ago to remove a 5lb tumor. I have had to go back three more times to remove excess skin or bulk. I hate it because... |
| I have cafe au lait and also neurofibromatosis. What are the chances of my child have cafe au lait and/or NF1? |
It has autosomal dominant inheritance pattern. So, assuming your spouse does not have neurofibromatosis and is recessive (aa), and you are either homozygous or heterozygous (AA or Aa). Your child... |
| Dose anybody know if theres an neurofibromatosis specialest in any london hospital ???? |
The easiest way to find that out is call one of the hospitals and ask. If there is one in one of the London hospitals they will be able to tell you which one. ... |
| Im 38 and think i have neurofibromatosis what can i do? |
I'm surprised you're that old and haven't been diagnosed before this. Have you not had any symptoms up til now? Anyway, if you're lucky, you won't get too many flare-ups an... |
| Where can I find information on Neurofibromatosis? |
Neurofibromatosis is a autosomal dominant genetic disorder. ... |
| Can i have some help about Neurofibromatosis?? |
The neurofibromatoses are genetic disorders of the nervous system that primarily affect the development and growth of neural (nerve) cell tissues. These disorders cause tumors to grow on nerves and... |
| What kind of genetic mutation is Neurofibromatosis? |
In 50% of cases, a parent passes the defective NF gene (i.e., NF1 or NF2) to an offspring, resulting in autosomal dominant transmission. The NF1 and NF2 genes have tumor suppressor function. Rarely... |
| Hello, Im looking for anyone with Neurofibromatosis.? |
Here is the Yahoo Groups link for people with NF. Hope it helps. Good Luck.
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| Can you breastfeed if you have Neurofibromatosis? |
It varies for every woman, Many women with neurofibromatosis have no problems breast feeding or minor problems that can be over come. My best advice is there's no harm in trying. Is there a br... |
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