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Neurofibromatosis...? |
i have nf type 1.i know everytjing there is to know about this. only thing is i have lumps covering my body arms and slight on face, id like to know if anyone out there with this with any advice/tips, on hw to help overcome this?. it affects me everyday, i hate looking in the mirror, i am blessed with 2 lovely children though one does not have it he has been given the all clear, not sure about my daugher though although it looks good as she has no marks yet ( she is 9 months old I DO HAVE SOME removed from time to time, in uk, thats where i am. Both my son and husband have type 1 nf, so does my mother in law and a sister in law. You can have the lumps (which are actually neurofibromas) removed but it has roots (kind of like a wart) and the only way they will be completely gone is if the DR gets all the roots. My husband has some on his face and sometimes has trouble shaving around them, I know they are difficult at times. One day at a time. You can have them removed depending upon where they are. And yes it is possible for them to grow back. I would talk to your doctor about it. I have a doctor that just for my nf, he's in Chicago. |
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