Can neurofibromatosis type 1 be detected before its symptoms appear? if so, how and when?

The incidence of vonRecklinghausen's disease becoming neurofibrosarcomas is very rare. In reviewing the literature for an article I wrote, I found the possibility of malignant transformation f...

My son has NF1, and each and every case is different. I once asked his doctor are people as severe as John Merrick still born to this day, he said yes...however with modern medicine, you'll ne...

I am a 27 year old woman with nf1, I have several neurofibomas on my body and few within that cause pain. I also have 2 in my brain, which at this point, have caused no problems other than headach...

It is possible, neither one of my parents or my siblings, grandparents, aunts or uncles had it and I was born with it, we found out when I was 15. The only person we know of in my family that had i...

Unfortunately, I am not aware of a treatment for the cafe au lait spots. I guess if you have a mild case, you can try to cover some of the spots but I would defer to a female who uses make up. F...

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethni...

I have NF type 1. There is a 50% chance of passing this on to your children. It does not make your pregnancy higher risk. I have two children. One has NF one doesn't. NF varies in degrees...

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