mcrh.org
*Home>>>Neurofibromatosis

Do you have Neurofibromatosis?


Hello. I'm doing a Biology Honors science project in which i need to thoroughly research and become an expert on a specific genetic disorder. My genetic disorder of choice happens to be Neurofibromatosis. For this project i also need to preform a case study.

IF you have/ know / or are related to someone who has Neurofibromatosis and are comfortable with discussing it with me, please post an answer to this question and I will contact you. If it is someone you know, please give them my e-mail address and have them contact me.

Thanks - J

Hello,
I have Neurofibromatosis 1. Diagnosed when I was 18. If you are still interested e-mail me @ MsMWalker@aol.com

Hi , My name is Wilna, i am 48 and live in Holland. I am married to Leo and i do have NF1.
WWe do want to help you with your project, we do have lot of excperiences concerning NF.

Regards,

Wilna en Leo Velthuis
http://leoenwilna.mijnvrouw.nl Report It

Yeah,sure.

I have neurofibromatosis type 1 and I will be happy to help you out.I know lots of information on it.It is a very interesting disease

Tags
  Non-Hodgkin Lymphoma   Nicotine   Niacin   Neuropathy   Neuromuscular Disorders   Neurologic Diseases   Neurofibromatosis   Neuroblastoma   Nerve Diseases   Nephritis   Neoplasms   Neck Disorders   Neck Injuries
Related information
  • I have Neurofibromatosis dose any one have it?

    yes

    ...
  • I have neurofibromatosis.?

    It would be at your own choice, though you can still have babies with NF. There are a couple of things you should know. One is if you have NF and are pregnant, your NF can get worse while your preg...

  • If you are a teenager or an adult with neurofibromatosis NF1, NF2 or schwanamotosis. what are your symptoms?

    I am 26 and have nf1 and vonrichkenhause (not sure on the spelling on that), but my tumors didn't start to appear until I hit puberty. I have spots all over my chest (and some lumps). I will...

  • Biochemical basis of von Recklinghausen syndrome a.k.a. neurofibromatosis type I??!! HELP?!!?

    This is caused by a mutation in the gene coding for the protein neurofibromin type 1 (NF1). This mutation is autosomal dominant. In 50% cases the mutation is not inherited but spontaneous. This pro...

  • How many of you have heard of Neurofibromatosis?

    i have NF did you know your kids have a 50/50 chance of passing it on.. to their kids.. ?

    ...
  • Is there anyone else out there with Neurofibromatosis?

    I have NF1, and have a number of neurofibromas at various places of my body. I have had several cut out over the years but as you know, new ones will form from time to time. Since the condition i...

  • At what age do symptoms of neurofibromatosis start to appear?

    From infancy to 16 years of age. Neurofibromatosis (NF) is a condition that causes tumors to grow on nerve tissue, producing skin and bone abnormalities. NF is often diagnosed in childhood, occasi...

  • Is anyone here familiar with Neurofibromatosis?

    I have had 6 large tumors removed from my body, and have been thought to have Neurofibromatosis, but all doctors involved in my treatment couldn't agree on a diagnosis. My tumors have been se...

  •  

    Categories--Copyright/IP Policy--Contact Webmaster