How many of you have heard of Neurofibromatosis?

Neurofibromatosis (NF) is a neurological disorder that although fairly common, is hardly heard of. What it does is cause tumors to grow along the nerves, randomly, in the body or on the skin. It can also cause a lot of other things, ranging from scoliosis and learning disabilities to cancer. It is a genetic disorder, progressive, and has no cure.

As a mom of two kids with NF, I have been working towards bringing awareness to my community. I am just curious as to how many people reading this might actually have heard of NF, or possibly either have NF or know someone who does.

i have NF
did you know your kids have a 50/50 chance of passing it on.. to their kids..
?

I've heard of it, but I spent a lot of time growing up around the chilren's hospital's my brother was in. Now, I'm in nursing school, so my knowledge is a little more extensive than the average joe.

not me.. thanks for bringing to my attention.

Tags

　　Non-Hodgkin Lymphoma 　　Nicotine 　　Niacin 　　Neuropathy 　　Neuromuscular Disorders 　　Neurologic Diseases 　　Neurofibromatosis 　　Neuroblastoma 　　Nerve Diseases 　　Nephritis 　　Neoplasms 　　Neck Disorders 　　Neck Injuries

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Re: Neurofibromatosis?

Sorry to ask spud but what NEUROFIBROMATOSIS?

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