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Is there anyone else out there with Neurofibromatosis? |
If so, have you ever tried holistic medicine or alternative medicine? Do you think accupuncture or accupressure will eliminate the bumps associated with Neurofibromatosis? I have NF1, and have a number of neurofibromas at various places of my body. I have had several cut out over the years but as you know, new ones will form from time to time. Since the condition is genetic, I do not think there is an alternative medicine that can help... but I have researched high and low. I share your stress over wishing there was a way to make the bumps go away. Depending on if the bump is more on top of the skin or below, some have found success with laser treatment.. but regardless of how the tumor is removed there is usually a scar. For me, every few years will have the doctor remove the largest or most visible ones. I pray that you can still find peace in that you are of great value and worth as a person despite the imperfections. I wish you the very best. |
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| Non-Hodgkin Lymphoma Nicotine Niacin Neuropathy Neuromuscular Disorders Neurologic Diseases Neurofibromatosis Neuroblastoma Nerve Diseases Nephritis Neoplasms Neck Disorders Neck Injuries |
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From infancy to 16 years of age. Neurofibromatosis (NF) is a condition that causes tumors to grow on nerve tissue, producing skin and bone abnormalities. NF is often diagnosed in childhood, occasi... I have had 6 large tumors removed from my body, and have been thought to have Neurofibromatosis, but all doctors involved in my treatment couldn't agree on a diagnosis. My tumors have been se... My best guess is, it's the Neurofibromatosis. I have a large mass on my right upper part of my leg, it hurts like heck, comes and goes, can be a sharp pain, other times it feels like a pinch. ... I have it. I to have the pins and needle feelings and sometimes the numbness, feeling which led to me getting another one of those fun MRI's which they found tumor pressing against my spine ar... At NO POINT during my consultations have they ever mentioned MS and I hope they never do. We have enough to contend with!! I do however, get the odd bout of pins and needles NF Sufferer. ...My son has NF1, and has had surgeries (one very major), but none for aputation. I don't know how old you are, but the Childrens Tumor Foundation has a chat room for kids and teens with NF t... Sorry to ask spud but what NEUROFIBROMATOSIS? ...It sounds like your NF is causing some problems for you, mainly discomfort while breastfeeding. What remains to be seen is if the NF is causing your low breast milk production. If the nerve impulse... |
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