Does anyone have Neurofibromatosis Type 1?

I was born Neurofibromatosis Type 1 and I have pain, numbness and pins and needles with it. Does anyone out there have the same illness as me? If so, how are progressing and what are you doing about treatment?

I have it. I to have the pins and needle feelings and sometimes the numbness, feeling which led to me getting another one of those fun MRI's which they found tumor pressing against my spine around my neck. I had to have surgery.

As for treatment, I'm taking nothing expect everyone in a while a pain pill as needed.

Tags

　　Non-Hodgkin Lymphoma 　　Nicotine 　　Niacin 　　Neuropathy 　　Neuromuscular Disorders 　　Neurologic Diseases 　　Neurofibromatosis 　　Neuroblastoma 　　Nerve Diseases 　　Nephritis 　　Neoplasms 　　Neck Disorders 　　Neck Injuries

Related information

Multiple Sclerosis and neurofibromatosis?

At NO POINT during my consultations have they ever mentioned MS and I hope they never do. We have enough to contend with!! I do however, get the odd bout of pins and needles NF Sufferer.

...

A question about Neurofibromatosis and amputation(s)?

My son has NF1, and has had surgeries (one very major), but none for aputation. I don't know how old you are, but the Childrens Tumor Foundation has a chat room for kids and teens with NF t...

Re: Neurofibromatosis?

Sorry to ask spud but what NEUROFIBROMATOSIS?

...

Can neurofibromatosis affect breastfeeding?

It sounds like your NF is causing some problems for you, mainly discomfort while breastfeeding. What remains to be seen is if the NF is causing your low breast milk production. If the nerve impulse...

Is neurofibromatosis Cancerus?

In about 5% of cases it can be. I have neurofibromatosis, just last week I had 35 neurofibromas removed. If you want to talk contact me. tlarson58103@yahoo.com

...

Neurofibromatosis Type 1?

www.nfinc.org. www.ctf.org www.nfinc.org www.understandingnf1.org ...

Neurofibromatosis does anybody else have to deal with this pain in the a$$???

I have neurobfibromatosis. and since if I was to have any children they would of had a 50/50 chance of getting it I opted not to have any kids. I also have 3 Brothers and 1 sister that has it as...

Neurofibromatosis 2 - Can it be missed on a CT Scan or MRI?

I have Neurofibromatosis type I so I know a little about what she is going through. Type II is a little harder to detect. Whereas type I there are tumours that grow on nerve endings. I had one ...