Neurofibromatosis Type 1?

does anyone have NF1? If so, what symptoms can a person have in there early 20's or older? Are sharp pains lasting seconds to minutues in legs or arms periodically one of them? What can it cause in adults who have the disorder?

www.nfinc.org.
www.ctf.org
www.nfinc.org
www.understandingnf1.org
http://www.genome.gov/16015146
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What are the features of Neurofibromatosis-1?
Most people with NF1 will have some but not all of the following signs:
Multiple large light colored birthmarks called caf茅-au-lait spots, which are the hallmark of NF1 and are seen almost 100% of the time
Many freckles in the armpits and the groin
Dark growths on the colored portion of the eyes called iris Lisch nodules
Multiple small, rubbery lesions on the skin with a purplish discoloration called neurofibromas, which usually appear during adolescence or pregnancy
Areas of diffuse thickening of the nerve trunks that are frequently near the eyes or in front of the ears called plexiform neurofibromas, which are usually present from birth
Scoliosis or other bony abnormalities
Growths within the eye affect 15% of people with NF1, and some people with NF1 will have visual difficulties
A parent, brother, sister, or child with NF1

Tags

　　Non-Hodgkin Lymphoma 　　Nicotine 　　Niacin 　　Neuropathy 　　Neuromuscular Disorders 　　Neurologic Diseases 　　Neurofibromatosis 　　Neuroblastoma 　　Nerve Diseases 　　Nephritis 　　Neoplasms 　　Neck Disorders 　　Neck Injuries

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