Neurofibromatosis 2 - Can it be missed on a CT Scan or MRI?

Basically, I'm wondering if it's possible for a person to have the condition and have a clear MRI / CT Scan.

A 17 year old young lady, with over 14 cafe au lait spots, severe vertigo, constant tinnitus, vision problems and irregular headaches has had all these issues arise within the last three years. The sysmptoms have been becoming increasingly troublesome. No diagnosis has been found.

One of my friends with NF heard and was outraged that the doctors had just shrugged the possibility of the girl having NF. The main reason was that two year old CT scans and an MRI had come back clean and that the cafe au lait spots are rather pale.

Can the tumors be missed on CT Scan? Can they develop after symptoms are observed?

((Unless you find a article directly about this, please no copy/pasting from online... I can do that myself, thank you.))

I have Neurofibromatosis type I so I know a little about what she is going through. Type II is a little harder to detect. Whereas type I there are tumours that grow on nerve endings. I had one on my optic nerve thus leading to the removal of my eye when I was 3. I have the cafe o lait spots all over my body but have about 80. I have also had the headaches (mine have been for at least the last 12 years)
One question, when she had the MRI and CT did they do a dye contrast with it? If not, it may not have picked anything up. Your friend may also benefit from speaking to a geneticist. If you or your friend want to talk more I'd be more than happy to chat about it. E-mail me on groovymum28@yahoo.com.au and I will get back to you as soon as I can. (Not forgetting that I am in Australia and there may be a time difference)
Hope this helps and have a great day/night!!!
xx

Don't forget to get to ask the Dr for another scan with a dye contrast as this will pick up a little more hopefully. Report It

Yes

of course. radiologists are great, but not perfect.

Yes...anything can be missed on an MRI & CAT Scan.