I have Neurofibromatosis 1 .. I was wondering if anyone having nf1 had problems with there feet ..?

And had hearing problems.. I have hearing loss and problems with my feet.. I found out that i had nf in 1976.. I have the spinal fluid in a sack that (was) eating away at my spine until the drs. put a shunt in my back to drain the liquid from it.. does anyone else have this, Also does anyone else have neuromas?

Well I have NF1 And I have bumps on the bottom of my feet, Once in a while an new one will start then callous cover it , it hurts for a while but I'm use th this kind of pain it gives Me ,
I have Tinnitus (Ringing in the ears) Have had for some time Al tho I'm thinking its from grinding My teeth when I sleep, I have many tumors all over my Body None have been found in side that causes trouble as of yet, i do have a Plexiform on My right arm, ...If you wish to contact me my e-mail is kim_mepa@yahoo.com

Depends what you mean by problems with your feet?

My toes are clawed, V high arch. Had a nerve biopsy to confirm that it was due to NF.

Hope that helps

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