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Does any one have neurofibromatosis 1 or 2, & how do you deal with it & with how others treat you?


I'v hade it my hole life, and was just wondering how you deal with it. {:-)}

hi there i have nf as well right now its fairly mild but my dad and grandma and aunt had a pretty sever case you could not tell my dad had it till after he turned 30 ive her dthat hormomes cna offset the disorder and it scares me becuas ei wan to have children eventually but i dont wnat to be cast out like my dad after all my hard work at college( noone public will higher my father becuase of how he looks)
i had alot of touble in elementry school being made fun of it was really hard on me i nevber used to wear bikinis because that is where most of the spots were i had a few removed and now its not so bad but i still feel very uncomfortable sometimes ad i can feel myself eseteem. i just try to keep my head up i know im a good person and some people are to arrogant to look below exteriors most people cant tell i have anything but some ppl who i tell have said i knew there was soething worng with you look at you! and it hurts alot . try not to let it get to you we are beutifull people too:d you can email me if you want i do not know many people with nf and would like to chat just ad my user name as an emil cuddle_bug_27@yahoo.com

www.google.com has a great deal of information that you could use to find your answers , while yahoo answer is more likely to be better for people's opinions.. thanks.

my friends kid had it and they used this natrual soy lotion.natureswondersoyessentials.c @simply smelly goods.

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